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What does it mean to live with lupus?

What do you wish the world better understood about life with lupus?

  1. Our pain &how hard it is for us

    1. , It's so hard to explain to someone who isn't living with the pain and fatigue every day! Just because they can't see it doesn't mean it's not happening. We hear you!
      Gabby (team member)

    2. absolutely I do t think many understand it at all. ~Racquel~ team member

  2. thank for hearing me

    1. It is a battle and hard so just understanding is great don't downplay a symptom or complaint just because you feel it silly

      1. for sure understanding is so important. Thanks for that. ~Racquel~ team member

    2. Every day is physically unpredictable

      1. yes ma'am

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