FrustrationI had a positive ana test last May and I was told I had lupus. Then I was told by the doc that it is not lupus. I have been...Reactions 0 reactions Comments3 repliesDiagnosis
Methotrexate injectionsI have just started (4 weeks) on 10mg methotrexate by injection. My problem is I am having severe uncontrollable bouts of diarrhoea. I'm afraid to leave the house at the...Reactions 0 reactions Comments1 repliesSide Effects
Benlysta - or what?There are so many drugs out there, but my symptoms are mild (from what I've been reading). I'm on the (standard) hydroxychloroquine (aka Plaquenil) for a year now. My MD...Reactions 0 reactions Comments2 replies
Cutaneous lupusCan it spread from one limb to another by contact such as crossed legs on my own body? I understand it's not contagious so probably not, but it appears to...Reactions 0 reactions Comments1 repliesAwareness
Dealing with SiblingsI was diagnosed in Dec. 2022. It has been a swift and complicated time since then. I have been diagnosed with Stage 2 kidney disease, cyst on kidney, bladder infection...Reactions 0 reactions Comments2 repliesFriends & Family
Could these antigens be lupus?ENA screen contains the following antigens: SS-A/Ro52, SS-A/Ro60, SS-B/La, U1RNP, Sm(D), Scl-70, Jo-1 and CENP-B These are the results of my blood test....Reactions 0 reactions Comments1 replies
PlaquenilShould a Lupus patient be taken off of Plaquenil entirely just because of no complaints or bad blood work? My Rheumatologist recently decided to stop prescribing Plaquenil (200 mg once...Reactions 0 reactions Comments1 repliesTreatment
Two of our mothers pass away with Lupus!More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...Reactions 0 reactions Comments0 repliesAwareness
Hi all. I need advice with Anti SS-A-RO reading. Mine came back at 91. I’m new to this site. And I would great fully appreciate any advice concerning my very high reading of 91. For my SS-A -RO reading. Currently I’m on Amgevita 40mg...Reactions 0 reactions Comments3 replies
Lupus or hivesHi I have recently seen a rheumatologist for the first time after symptoms that I thought may be lupus. I keep getting out on antihistamines and steroids. The lumps, rash...Reactions 0 reactions Comments10 repliesSymptoms