Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us.
If you've been diagnosed with TLE, we want to hear from you!
People in the past have told us that their TLE was rarely spoken about, and that finding support has been helpful. If you have the time and energy to spare, please share your experiences with TLE. I have no doubt that many people will find comfort in hearing about your journey.
Warmly,
- Cody (Team Member)
I have it! Diagnosis by biopsy. My Rheumatologist had my dermatology slides tested by her lab at Umassmemorial as she doubted I had it. Test positive with their lab also. I’ve had 2 flare ups of the rash. 
I'm happy to hear that your rheumatologist sent your slides to get tested, even if they doubted that you had TLE. That must be a big relief. Has anything helped with the rash so far? I'm still learning a lot about TLE, and would love to know anything that's helped so far. Warmly, - Cody (Team Member) 
bravo for a doctor that turns every stone. I hope your treatment is helping to keep it all under control. ~Racquel~ lupus.net team member
My rheumatologist diagnosed me with it but says since I don’t have SLE that my pain and other symptoms must be from something else…I got so frustrated I quit going to see him..I was diagnosed in 2018 but have had all the symptoms since I was a child.
, I don't blame you for giving up on that rheumatologist! It's frustrating when you feel like your doctor just isn't listening to you or is dismissing your symptoms. I am glad you joined this conversation and I do hope you are under the care of a good rheumatologist now.
Best, Erin, Lupus.net Team Member.
