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Read conversations, start a discussion, and connect with others about Lupus.

Keep my spoons

I got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...

Disbelief

It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had a difficulty with getting others, physicians included, to...

Two of our mothers pass away with Lupus!

More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...

Digestive issues

Does anybody fight getting nausea diarrhea, for no reason. Food is offensive to the smell?...

How can lupus impact complete blood counts? Just going for initial tests

Hi, I visited my doctor today as I have low neutrophils and low white blood count and this has been going on for long enough that it's 'chronic.' (Neutrophils: 1.21...

I have chronic diarrhea anyone else?

This is weird talking about! I can't go anywhere without having to go so I stay home lately I can not even walk my dog depressing drs are doing all...

Plaquenil- steroids- Lupus

I have had lupus for 8 years diagnosed have been allergic to everything I have been given. so tired of having joint pain and no DR will give me Tramadol...

Taking notes to the doctor.

I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...

Lupus Awareness Month

If you could craft the most helpful lupus awareness month, what type of activities would you include?...

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...

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