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Read conversations, start a discussion, and connect with others about Lupus.

Managing Lupus when Treatment Isn't Simple

What are your experiences managing lupus when treatment advice isn't clear or you don't have the necessary resources? What helps you get...

Decrease in symptoms

I've noticed that when I have an infection, cold or virus my discord lupus blemishes decrease and so does the itchiness. Just...

Breathing

Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out...

Anyone else having balance issues or TIA's?

This question comes from the community member Mrschp: "Has anyone ended up with balance issues? Over the past two months, I have...

benlysta

This may be an odd question..anyone experienced flares a few hours after benlysta iv infusion..i always get flare symptoms after my infusions...

where are old timers?

I had 12 doctors who took 18 years to diagnose correctly. At 68 no one knows why I am still alive. Lots...

New to this

Sorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I...

What does it mean to live with lupus?

What do you wish the world better understood about life with lupus?...

Medication

Has anyone had their medication not work? Taking Hydroxychloriquin and Methotrexate and still in pain. Very frustrating!...

Self Care and Lupus

Educate yourself on every aspect of being diagnosed with Lupus ~ Body, Mind and Spirit. Become your own trusted advocate. 🌻...

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