Hair thinning
Has anyone experienced thinning hair on one side? I know hair thinning is typical for older women but this started when I started having lupus symptoms about 10 yrs ago. My right side is alot thinner. Quite noticeable.
Hi. Sorry to hear that you're struggling with this. I'm sure a lot of other community members can relate, as hair thinning is common with lupus. Until others are able to chime in on the conversation, I did want to share one article that we do have on managing lupus hair loss with you:https://lupus.net/living/managing-hair-loss. Let us know if any of those tips are helpful! I hope that others who are experiencing this will jump in on the conversation soon. This is a great topic to discuss!
- Cody (Team Member)
Yes, I have. It's interesting my thinning is on the right side as well. No matter what I do it stays thin on that side. I end up just combing my hair from the left over to the right to make up for it. Lupus can definitely do a number on your hair, as well as stress. I have noticed that when I limit my stress and limit the chemicals I put on my hair it definitely helps. Thanks for your question and being here. I hope you are able to speak with your doctor about this as well. They may have some suggestions that will help. ~Racquel~ lupus.net team member. 
Hi
I've always had thin hair, but once I was diagnosed, I noticed so much hair just falling out and even patchiness on my scalp. This was all before my 30th birthday so I was freaking out. I try to style it as best as I can so its not so noticeable. I would also suggest speaking to your rheumatologists or even a dermatologist to see what you can do to help.
Best,
Geri (lupus.net, team member)
Yes I have dealt w this it was a tingling sensation I noticed I get prior to losing hair. When I say my scalp was sensitive n such an ugh way it felt like chills through my skin n these shocks n then itchiness. That was the beginning n I had patches on my left side like somebody took a shaver n zzz 3 areas leaving me balls in each area it took 3 yrs for this hair to grow back the same I truly never thought I get color back in the hair it was 3 streaks of platinum that I was seeing I now have such thin hair I use to have the thickest fullest curly hair I loved my hair the one thing I had confidence about n always treated my hair so good. This has taken away from me I think more then any other defects from my disease
, My heart goes out to you, its so hard to watch your body change without feeling like you have any control. I'm glad to hear that it grew back in time, I hope it continues to grow to the point it used to be before lupus got involved 💜 Sending gentle hugs to you.
Gabby (team member)Gentle hugs to you. I know that feeling of grief of what our bodies and minds once were before this horrid disease. It can take some time to get back what we feel we lost. I have had to come to the conclusion with my hair that it has changed not only with lupus issues but age. I have started to just try different hairstyles. That helps me to accept it a little more than usual. The tingling sensation... Sheesh that is the most annoying. I get that often especially when in a flare. It's really so hard to deal with sometimes. I remember reading this article and seeing some good advice to take care of my hair. Maybe it can give someone an idea as to what to do for themselves.
https://lupus.net/living/managing-hair-loss
~Racquel~ lupus.net team member
