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Read conversations, start a discussion, and connect with others about Lupus.

Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us.

If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...

Doctor Care

My rheumatologist will only help with prescribing Mycophenolate and taking blood & urine every 6 months. I'm deathly allergic to Plaquenil or Hydroxycloroquine so all I have is the Cell-Cept...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...

Hair thinning

Has anyone experienced thinning hair on one side? I know hair thinning is typical for older women but this started when I started having lupus symptoms about 10 yrs ago...

Swelling in my feet and legs

Does anyone have trouble with swelling in your feet and legs if so what do the Dr's do for you is this a flare up...

Brain fog

What is brain fog...

Does anyone have problems with “acne” on face, arms or legs?

I am 41 and have had breakouts my entire life but seems to be worse lately especially on my upper arms. Some of my medications seem to worsen it....

Cart T-Cell Therapy for Lupus/Autoimmune

After taking over a decade to diagnose, and now having lived with Lupus for a number of years, which in my case caused Interstitial Lung Disease, Lupus Nephritis, Fibro, and...

Misdiagnosis

Far too often, it takes years between symptom onset and receiving an accurate lupus diagnosis. When did your symptoms begin versus when you received your diagnosis? Was anyone here initially...

Traveling causes lupus flare

I recently went on a trip and got a lupus flare going and then coming back. The flare causes fever, tired, body aches, sinus issues and coughing. A lupus flare...

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