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Forums

Read conversations, start a discussion, and connect with others about Lupus.

Test Results

I have a positive ANA Titer 1:640 Pattern Smooth Speckled and a positive Anti-double stranded DNA Antibody(SLE) 41. My doctor started me on hydroxychloroquine but is not ready to give...

How do you cope when you are flaring but you have obligations?

Lupus flares can pop up unexpectedly and don't take into consideration your upcoming plans, or obligations with work, family or friends. How do you cope when you are fighting a...

Disability

If you are getting SSDI What was the hardest part for you in getting disability? Was it proving the disability, being okay with being labeled disabled or something else?...

No appetite

I feel like food has become a source of anxiety. I don’t know how it will make me feel. I have no desire to eat. I eat a little but...

Possible Lupus diagnosis

Hello Everyone! I joined this group as I am waiting to get into a Rheumatologist next month. I wanted to just kind of run my issues and symptoms by everyone...

Help for a diagnosis

I’ve been dealing with Lupus like symptoms for just over two years with my most recent flare kicking off in September. I’ve seen doctors and I still don’t have an...

Lupus/Fibromyalgia

Hi hope everyone is having a good weekend. I have a question for my fellow Lupus/Fibromyalgia sufferers. How can you differentiate between a Lupus flare and a Fibro flare?...

Experience with Cats Claw?

Hi friends, I’m new here and new to lupus - I am very tired but with the little energy I have had, I have been on the research train nonstop...

Nocturia

Does anyone have to get up 5 times a night to pee? I've tried to stop drinking several hours before bed and I still get up several times a night...

Anyone else have heart issues?

Before I begin - my insurance is denying me for a cardiologist. I’m working on it. This is kind of a follow up to my previous post. The fever thing...

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