Hair Loss
Anyone else struggle with hair loss? Any suggestions or anything that worked for you? This was probably my most obvious symptom for years, but I was just diagnosed late last year.
, here is some basic info to get you started, just in case there is something here you don't already know - https://lupus.net/symptoms/hair-loss. I hope others will chime in with their personal experiences. - Liz (lupus.net Team Member) 
Yes I just had to shave my head cuz I have lost almost all my hair. I have had this before but not as bad as this time. Part of having lupus
I think that would be a good person to talk to. It makes it a little easier when you know them rather than having to talk to a stranger about things. My hair has greatly thinned but I am grateful for a think head of hair to start with!!
Amber (lupus.net team moderator)
I love your attitude. But many women would have been able to just live in quickly. Big hugs!
Amber (lupus.net team moderator)
Yes I have experienced hair loss several times over the course of being diagnosed. I have found what works for me is to cut it and let it start all over. My hair is so funny when it goes through that lupus stress it really doesn't respond to anything else but being short. When it grows back as my health gets better it comes back just as long and strong. When the hair does return I limit the stress I put on it. So I don't do a lot of heat or extreme washing and pulling. ~Racquel~ lupus.net team member I'm keeping it shorter than I used to but I should probably go even shorter. I only wash it 1-2 times a week. It's hard because I've used to have thick, long hair. It's actually okay in the back but I have a big area on top where there is little hair. I think the shorter cut helps to balance out the look some, but I think the only option to cover it is going to be a full or partial wig. Unfortunately, It doesn't seem to get better even when I'm feeling well.
