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Toenail Issues

Anyone have toenail issues with lupus? Do your toenails grow thick and eventually fall off? if so, how do you handle it? What has the doctor said about it?

  1. I’m having that same issue, but I don’t know if it’s from my lupus or psoriasis.

    1. interesting. I guess iymay be a combination of both 🤦🏾‍♀️ ~Racquel~ lupus team member

  2. What are the best treatments for toe nail issues? My doctor's all say I can't take the medicine to fix it due to my Lupus.

    1. Honestly I am not sure. My doctors, like yours, say the oral meds can pose too much of a strain on my kidneys. I have resorted to just getting gentle pedicures and I use lime when they fall off to clean it up and give some activity to heal. My doctors always say don't worry about it just let it fall off and come back. Sometimes they come back strong other times they just fizz out for a while. ~Racquel~ lupus team member

  3. I had a problem with a fungus causing me to have a really bad ingrown toenail. The foot doctor cut it out but said the whole nail should be taken permanently, or it would keep happening. I don’t know if it's from my lupus or not.

    1. , It's hard to say, it seems like lupus has a way of affecting every part of the body! Did you end up having the nail fully removed? My mom had a similar situation and had to have her big toenails removed permanently as well. Now she buys/applies stick-on fake toenails from the pharmacy during sandal season.
      Gabby (team member)

    2. wow ok. The fungus can reoccur too from my understanding. When speaking with my doctor he stated it happens more often than many ever talk about with lupus patients. Could be lupus or even the meds. ~Racquel~ lupus team member

  4. I did have it permanently removed... left big toenail. Everything my body goes through now I have to wonder if it's lupus related 🤷‍♀️

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