Hi Ruckus, Thanks for reaching out. As we wait for others to chime in on what makes a difference for them, it's important to note that the symptoms and severity of the disease can vary widely between each individual. The type of treatment your doctor recommends will depend on whether your symptoms are mild, moderate, or severe, and what part of the body is affected. I thought I'd share this article that may provide some additional information: https://lupus.net/treatment All my best, Doreen (Team Member)
CommunityMembere7cd71Member
I am 71 years old. My lupus has carried me on along road. You need to see your Dr's and keep up with your journey, to know where you are. Because so much changes as you go. So many changes. But hang it there. Sending love and prayers.
Doreen HCommunity Admin
, Thank you for sharing your experience and encouraging words of advice. ~Doreen (Team Member)
CommunityMemberd56de1Member
Give yourself permission to do absolutely nothing on days when your having a flare up.
Kristi1969Member
I feel so guilty when I do this 😞
chestncMember
Never feel guilty. When you have a flare you deserve to stop and rest so you can feel your best.
beautifleyeMember
I would began journaling my every day. It takes you knowing your body to educate these doctors. You must advocate for yourself.
GabbyFormicaCommunity Admin
, This is such a great reminder. It can be difficult to remember everything that's been happening to your body in those brief face-to-face moments with doctors. For folks who may not know where to start with journaling, we have a free downloadable symptom tracker: https://lupus.net/living/symptom-tracker That can be a good place to start! Thanks for sharing this reminder!
Gabby (team member)
Sev921Member
so true! Lol educate these doctors. I have yet to meet one that has actually “helped” me feel better.