My heart goes out to you, . Please know you are not alone in this. It can be pretty easy to feel like a burden and to feel useless when you are in the midst of a painful flare, especially if your loved ones don't seem to understand or empathize with what you are going through.
Quite a few of our members have shared similar feelings to yours, so you have company when it comes to this! I thought you might appreciate this piece -- https://lupus.net/living/forgive. You didn't cause your lupus and you deserve to have your pain and your experience acknowledged and respected. It's a chronic condition, for crying out loud! You can't help it when a flare, well, flares up!
You matter. And please know you are welcome here anytime you need to feel a supported and understood.
Gentle Hugs, Erin, Lupus.net Team Member.