Active todayFeeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...reactions298replies
FeaturedActive todayIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...reactions245repliesAwarenessCoping
Active todayI have sle lupus and rheumatoid arthritis I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...reactions3replies
Active todayShould I start methotrexate?I’m 77 - have had three major joint operations in this past year; left rotator cuff, left partial hip replacement (not a...reactions2repliesCoping
Active todayAm I the only one that feels guilty for not being able to work?Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...reactions151repliesWork & Employment
Active yesterday"Planned Underachievement"Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...reactionsreplies
Active 4 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...reactions216repliesCopingJoint PainSymptoms
Active 7 days agoShame and GuiltDo you have shame or guilt when needing to rest?...reactions240repliesCoping
Problem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...reactions287repliesTreatment
CannabisHas anyone tried using medical cannibis for Lupus? I hear many great things about it but I would like to talk to...reactions20repliesMedical Marijuana