The Stigma of Explaining Lupus to OthersThe stigma of explaining lupus to others can be very hard. Why? Because lupus is considered not a serious condition. Most people...reactions5comments
Examples of How I Use My Daily SpoonsHave you heard of the spoon theory? It started when Christine Miserandino was trying to explain to a friend what it’s like...reactions4comments
Exercise IntoleranceI contracted mono (Epstein-Barr virus) at the age of 22 when my health problems began. I was fit and healthy before this...reactionscomments
2 Ways of Explaining Lupus Fatigue to Others"I have chronic fatigue, but that doesn't necessarily mean that I'm tired 100 percent of the time," I explained to a new...reactions7comments
Finding a Job With LupusTimes have changed! I do not know if it is for the better or worse. I currently sit and try to apply...reactions1comment
Getting Surgery for My Breast LumpMy appointment with the breast surgeon took forever to come. She was booked solid, and the earliest time to see her was...reactionscomments
Headaches and LupusOne of my main recurring symptoms of lupus is headaches. I seem to constantly go through phases where I get different types...reactions7comments
Methotrexate AccessMethotrexate is a common drug prescribed to people with inflammatory forms of arthritis and other autoimmune diseases. In an autoimmune disease, a...reactionscomments
World Changes Impact the Lives of the Lupus CommunityDetermine your strength to get you through the moments that feel the toughest. Always advocate for yourself, for better or worse, within...reactionscomments
Summertime with Discoid LupusSummertime is not my favorite time of the year. This is always the worst time for me due to the sun becoming...reactions4comments
My Experience Having Covid-19It was the day I knew would come eventually, and I dreaded it. My lateral flow test showed a very bright red...reactions3comments
My Experience With a Maternal Fetal Medicine DoctorIt was such an ordeal when I got my lupus diagnosis. There was so much trial and error on the meds that...reactions2comments
Expressing Gratitude with LupusHaving to deal with lupus can be challenging at the best of times. It's not always easy to feel gratitude for anything...reactions4comments
How Journaling Changed My Lupus OutlookI have been journaling since I could write. It has always been a part of my life to get things out of...reactions2comments
A Brain Inflammation Flare Made Me Forget What I Liked and DislikedIn 2014, I stood up after teaching a violin lesson one day and forgot how to walk. A severe episode of lupus...reactions3comments
Dealing With a Breast Lump as Lupus PatientWith lupus, you become more aware of your health. You get to know your body and know what is "normal." One day...reactions9comments
Words I Invented for Fatigue Because the English Language is InadequateWhen I first got sick with lupus, I was not a stranger to feeling tired. Throughout high school and college, I had...reactions10comments
Lupus, Pregnancy, and MotherhoodGrowing up, I knew I wanted to be a mom. But, with my lupus diagnosis, my dreams of starting a family were...reactions2comments
Finding Ways to Control Lupus SymptomsThis is a very intense topic to talk about. I have a lot of followers on Instagram that always ask about symptom...reactions1comment
Lupus and Mask-ShamingIt's been over 2 years since the start of the pandemic, and the world is starting to get back to normalcy. Restaurants...reactions6comments
