Tips To Be Ready For The Bad DaysWe have all been there – work, school, and maintaining a household. Some things that most don’t think twice about. It is just a part of adulthood, but for us...Reactions0reactionsComments1 comments
Tips For How to Make the Most of a Hospital StayAs lupus patients, our health can sometimes take a turn that requires immediate medical attention – which means a trip to the ER and most likely a hospital stay. Lupus...Reactions0reactionsComments0 comments
Victim or Victor?Do you ever feel like you are in a dark place? Like you can’t crawl out of a lupus flare before another flare takes a hold on you? Do you...Reactions0reactionsComments2 comments
My Journey To Filing For Disability, Part 1At almost 30 years old, in 2016, the word disability wasn’t even in my vernacular. Sure I knew what it was. I knew a few people in my support group...Reactions0reactionsComments0 comments
Health InsuranceWhen I moved back home, I didn’t think things in the system would become even harder to deal with. I just had to make a shift in my life because...Reactions0reactionsComments1 comments
Pants That Covered My Pain and Brightened My FutureI crave food! I crave food! I crave food all of the time! Whenever my rheumatologist and I discuss a regimen of prednisone, I find an excuse to avoid the...Reactions0reactionsComments1 comments
Community Views: What Lupus Fatigue Feels LikeFatigue is an intense feeling that many people do not fully understand until they are living with it. Fatigue is very different from just feeling tired. When we are tired...Reactions0reactionsComments16 comments
Things I am Tired of People Saying Because I Have a Chronic IllnessThere are so many things that I am tired of saying because of my autoimmune disease. Most of it relates to spousal support. There have been times when people told...Reactions0reactionsComments6 comments
Accepting Lupus After Your Mourning PeriodBeing diagnosed with lupus was probably one of most difficult moments you have had to deal with. You most likely had a whirlwind of emotions and negative thoughts. In all...Reactions0reactionsComments5 comments
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...Reactions0reactionsComments0 comments
Advocacy: We Have the Strength in Service of Ourselves“You have the strength to get up.” Many years ago, a woman got up in a room full of over 300 lupus patients and caregivers and made this statement to...Reactions0reactionsComments0 comments
Why Childcare Is Essential for Me as a Mom With LupusI am a stay-at-home mom and a work-at-home mom, but almost never at the same time. This is because I’m also a lupus mom and I don’t have enough spoons...Reactions0reactionsComments2 comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...Reactions0reactionsComments0 comments
Judgments We Can Face With LupusI had to give up my career in the travel industry 15 years ago which was an incredibly difficult time in my life, I absolutely loved my job and I...Reactions0reactionsComments1 comments
My Lupus Advocacy Work: An Interview With Racquel DozierOur Editorial Team spoke with Racquel Dozier, an advocate for the Lupus.net community who has been writing about her lupus journey for our community since 2020. Racquel was diagnosed officially...Reactions0reactionsComments2 comments
You Should Tell Your StoryWhen I decided to make a lupus video for Facebook, I did not expect to get the recognition that I would get. All my life I only heard my mother...Reactions0reactionsComments0 comments
Why I Joined a Lupus Support GroupAt my very first support group meeting, I walked into the Italian restaurant with sweaty hands. Not even the aroma of garlic bread and marinara sauce could settle the nervousness...Reactions0reactionsComments9 comments
CLOSED: Enter to Win a Blanket and Book Flare Care KitThank you to all who entered this giveaway! The giveaway is now closed. Winners will be notified via email by June 5, 2021. Enter to win the blanket and book...Reactions0reactionsComments0 comments
Lupus Awareness Month 2021: We Are Linked by LupusMay is Lupus Awareness Month. This year we honor the incredible community of people who are living with lupus. Too often those living with lupus are not understood by family...Reactions0reactionsComments0 comments
8 Tips for Parenting a Toddler When You Have LupusParenting a young child is physically demanding, and it’s often around-the-clock work. It’s been harder on my body than I expected. I constantly find myself at a crossroads where I...Reactions0reactionsComments0 comments