Words I Invented for Fatigue Because the English Language is InadequateWhen I first got sick with lupus, I was not a stranger to feeling tired. Throughout high school and college, I had...reactions10comments
Lupus, Pregnancy, and MotherhoodGrowing up, I knew I wanted to be a mom. But, with my lupus diagnosis, my dreams of starting a family were...reactions2comments
Finding Ways to Control Lupus SymptomsThis is a very intense topic to talk about. I have a lot of followers on Instagram that always ask about symptom...reactions1comment
Lupus and Mask-ShamingIt's been over 2 years since the start of the pandemic, and the world is starting to get back to normalcy. Restaurants...reactions6comments
Lupus Symptom BingoLupus can leave some people feeling out of control. You might experience flare-ups when symptoms worsen and other times when lupus symptoms...reactions14comments
5 Things I Learned From My First Surgery as an Autoimmune PatientHave you had surgery before? Until a few weeks ago, my answer was simply that I had my wisdom teeth removed as...reactions20comments
Therapy Is Not ScaryTherapy. The thought of going to talk to a stranger about your deepest darkest issues and traumas is daunting at best. But...reactions6comments
How I Beat Post-Exertional FatigueA month ago, I decided to change up my workout routine. Instead of my usual Pilates and light weight-lifting, I searched YouTube...reactions5comments
Take the Health and Media Habits Survey! *Now Closed*The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
The Trials and Tribulations of InfectionWhat do you do when contagions are all around you? During this pandemic, the phrase, "wash your hands," reminded me of my...reactions2comments
Who Inspires Me?There are plenty of people with lupus who inspire me. One person I admire and am truly inspired by the most is...reactions4comments
Family Planning with LupusFamily planning can be a tricky, delicate subject for many people. Having lupus only makes the matter more challenging. While it does...reactions3comments
Using Your Love Language to Cope with LupusIt can be hard to work on self-care for yourself in between pain and life. Self-care is anything that will make your...reactions7comments
Life After the Pandemic Mandates are Lifted as a Lupus PatientI know tons of people are sick of hearing COVID all over the news and are now rejoicing that the mask mandates...reactions1comment
How I Handle Housework With LupusLike many lupus patients, I don't have as much energy as a healthy person my age. I sleep 10-12 hours a night...reactions4comments
Vitamin D Deficiency Linked to Metabolic Changes in People With LupusA new international study published in the journal Rheumatology has shown that vitamin D deficiency may be linked to metabolic syndrome in...reactionscomments
Top Lupus Symptoms Include Joint Pain and FatigueLupus can present with many different symptoms and experiences. No two paths with lupus are the same. Differences in severity of symptoms...reactions2comments
Tinnitus – My Constant CompanionLast year I had a terrible upper respiratory infection. A couple of days after the symptoms began I woke up with roaring...reactions26comments
5 Creative Hobbies or Outlets For People with LupusStill haven’t found a creative outlet? Here are more ideas to try! (Energy Level: Moderate) When I was a young child, my...reactions1comment
Making It All Work: Consider Your Health When Starting a New JobI'm pacing around the house, saying, "will they call?" My family keeps calling to check on the status of my interviews. "Should...reactions4comments
