Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...reactionscomments
Advocacy: We Have the Strength in Service of Ourselves“You have the strength to get up.” Many years ago, a woman got up in a room full of over 300 lupus patients and caregivers and made this statement to...reactionscomments
Why Childcare Is Essential for Me as a Mom With LupusI am a stay-at-home mom and a work-at-home mom, but almost never at the same time. This is because I’m also a lupus mom and I don’t have enough spoons...reactions2comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...reactionscomments
Judgments We Can Face With LupusI had to give up my career in the travel industry 15 years ago which was an incredibly difficult time in my life, I absolutely loved my job and I...reactions1comment
My Lupus Advocacy Work: An Interview With Racquel DozierOur Editorial Team spoke with Racquel Dozier, an advocate for the Lupus.net community who has been writing about her lupus journey for our community since 2020. Racquel was diagnosed officially...reactions2comments
You Should Tell Your StoryWhen I decided to make a lupus video for Facebook, I did not expect to get the recognition that I would get. All my life I only heard my mother...reactionscomments
Why I Joined a Lupus Support GroupAt my very first support group meeting, I walked into the Italian restaurant with sweaty hands. Not even the aroma of garlic bread and marinara sauce could settle the nervousness...reactions14comments
Lupus Awareness Month 2021: We Are Linked by LupusMay is Lupus Awareness Month. This year we honor the incredible community of people who are living with lupus. Too often those living with lupus are not understood by family...reactionscomments
8 Tips for Parenting a Toddler When You Have LupusParenting a young child is physically demanding, and it’s often around-the-clock work. It’s been harder on my body than I expected. I constantly find myself at a crossroads where I...reactionscomments
Balancing a Healthy Diet With LupusMany have read and been told that there is a specific lupus diet that can help cure lupus. I have found that there is no established diet for lupus. Although...reactions2comments
Am I a Clean Freak?Am I a clean freak or am I just concerned about my health? The more and more I think about that question, the more I realize that I just prefer...reactions3comments
The First Time Someone Glared At Me For Using a Handicapped PassThe first time someone gave me a dirty look for using a handicapped pass happened in the grocery store parking lot. I was wearing a fluorescent coral dress and nude...reactionscomments
Communication is KeyMore than 24 million people in the United States have an autoimmune disease, according to the NIH. And even more experience chronic illness. In today’s age, it is hard to...reactionscomments
Practical Ways to Overcome Depression While Beating LupusWhat the hell? Helpless... Hopeless... Sometimes, I’m just sick of being the adult in this lupus relationship. I don’t know if I’m angry, confident, depressed, anxiety-ridden, happy, sad, or indifferent...reactions5comments
What Are Tips For Building a Good Lupus Doctor Relationship?A good doctor treats the whole patient. I am not talking about the philosophy held by many in holistic medicine. I am also not asking every physician to understand every...reactions3comments
Give Me My Life Back, LupusI want my old life back. Yes, I want my old life back. I want to be able to work and come home. I want to be able to help...reactions2comments
Amplifying Black Voices: How Healthcare Providers Can Better Serve the CommunityFor our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living with autoimmune conditions. Science shows that biases and...reactionscomments
Let’s Talk About Perfect Patient BurnoutI can’t recall what year in my lupus diagnosis I began feeling this way. It seemed the pressure was mounting with each specialist visit as more and more medication was...reactions15comments
A Day in the Life With Lupus: Evening and NightAround 5 pm, when my husband is done working, I usually take a break to rest before anything else. I’ll pass the care of our son on to him and...reactionscomments
