Balancing a Healthy Diet With LupusMany have read and been told that there is a specific lupus diet that can help cure lupus. I have found that there is no established diet for lupus. Although...Reactions0reactionsComments2 comments
Am I a Clean Freak?Am I a clean freak or am I just concerned about my health? The more and more I think about that question, the more I realize that I just prefer...Reactions0reactionsComments3 comments
The First Time Someone Glared At Me For Using a Handicapped PassThe first time someone gave me a dirty look for using a handicapped pass happened in the grocery store parking lot. I was wearing a fluorescent coral dress and nude...Reactions0reactionsComments0 comments
Communication is KeyMore than 24 million people in the United States have an autoimmune disease, according to the NIH. And even more experience chronic illness. In today’s age, it is hard to...Reactions0reactionsComments0 comments
Practical Ways to Overcome Depression While Beating LupusWhat the hell? Helpless... Hopeless... Sometimes, I’m just sick of being the adult in this lupus relationship. I don’t know if I’m angry, confident, depressed, anxiety-ridden, happy, sad, or indifferent...Reactions0reactionsComments5 comments
What Are Tips For Building a Good Lupus Doctor Relationship?A good doctor treats the whole patient. I am not talking about the philosophy held by many in holistic medicine. I am also not asking every physician to understand every...Reactions0reactionsComments3 comments
Give Me My Life Back, LupusI want my old life back. Yes, I want my old life back. I want to be able to work and come home. I want to be able to help...Reactions0reactionsComments2 comments
Amplifying Black Voices: How Healthcare Providers Can Better Serve the CommunityFor our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living with autoimmune conditions. Science shows that biases and...Reactions0reactionsComments0 comments
Let’s Talk About Perfect Patient BurnoutI can’t recall what year in my lupus diagnosis I began feeling this way. It seemed the pressure was mounting with each specialist visit as more and more medication was...Reactions0reactionsComments2 comments
A Day in the Life With Lupus: Evening and NightAround 5 pm, when my husband is done working, I usually take a break to rest before anything else. I’ll pass the care of our son on to him and...Reactions0reactionsComments0 comments
Patient RightsWhen someone goes to the doctor, they believe they have the utmost respect from their doctors and they really do not. Imagine going to a doctor and they are telling...Reactions0reactionsComments1 comments
5 R’s of Lupus to Get Through a Rough DayEvery day with lupus can present some difficult moments. One day you are on top of the world. The next day you are in the trenches fighting for your life. It...Reactions0reactionsComments8 comments
When Is It Time To Change Rheumatologists?At the end of 2017, I realized that I needed to change my rheumatologist. The time leading up to that decision leave my rheumatologist of 14 years. That rheumatologist and...Reactions0reactionsComments0 comments
Grief and Chronic IllnessThe year 2020 was not a good year for me at all. Grief was everywhere and everyone felt it. I was pregnant through the beginning of COVID. Remember that all...Reactions0reactionsComments2 comments
What Are Mornings and Afternoons Like With Lupus?I start to register pain as soon as I wake up in the morning. It starts a bit slow, thanks to the drowsiness of sleep, but within a few minutes...Reactions0reactionsComments3 comments
My COVID Vaccine Experience, Part 1After quarantining for 9 months, I was excited when immunocompromised people were scheduled to receive the COVID-19 vaccine in my state. As a lupus patient on immunosuppressants, I would be...Reactions0reactionsComments1 comments
Ultimate Lupus Survival GuideHaving lupus is very challenging. In fact, it can be downright overwhelming and difficult to handle day-to-day. The main thing that you have to learn to do from day to...Reactions0reactionsComments1 comments
Ethical Issues"Why won't you take my health insurance?" This is a question almost every patient has. Why can’t I see this wonderful doctor that I believe is a great doctor? It...Reactions0reactionsComments2 comments
Getting Support For Lupus While Going to CollegeI know that majoring in marine biology seems like a cliché, but I had a serious interest in the subject matter. As a child, I was fascinated with marine animals...Reactions0reactionsComments0 comments
What A World Built For Lupus Patients Would Look LikeAs a sick person in a world built for the healthy and able-bodied, I’ve often struggled to keep up with my peers who do not live with lupus. Occasionally, though...Reactions0reactionsComments2 comments