Amplifying Black Voices: How Healthcare Providers Can Better Serve the CommunityFor our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living with autoimmune conditions. Science shows that biases and...Reactions0reactionsComments0 comments
Let’s Talk About Perfect Patient BurnoutI can’t recall what year in my lupus diagnosis I began feeling this way. It seemed the pressure was mounting with each specialist visit as more and more medication was...Reactions0reactionsComments8 comments
A Day in the Life With Lupus: Evening and NightAround 5 pm, when my husband is done working, I usually take a break to rest before anything else. I’ll pass the care of our son on to him and...Reactions0reactionsComments0 comments
Patient RightsWhen someone goes to the doctor, they believe they have the utmost respect from their doctors and they really do not. Imagine going to a doctor and they are telling...Reactions0reactionsComments1 comments
5 R’s of Lupus to Get Through a Rough DayEvery day with lupus can present some difficult moments. One day you are on top of the world. The next day you are in the trenches fighting for your life. It...Reactions0reactionsComments8 comments
When Is It Time To Change Rheumatologists?At the end of 2017, I realized that I needed to change my rheumatologist. The time leading up to that decision leave my rheumatologist of 14 years. That rheumatologist and...Reactions0reactionsComments0 comments
Grief and Chronic IllnessThe year 2020 was not a good year for me at all. Grief was everywhere and everyone felt it. I was pregnant through the beginning of COVID. Remember that all...Reactions0reactionsComments2 comments
What Are Mornings and Afternoons Like With Lupus?I start to register pain as soon as I wake up in the morning. It starts a bit slow, thanks to the drowsiness of sleep, but within a few minutes...Reactions0reactionsComments3 comments
My COVID Vaccine Experience, Part 1After quarantining for 9 months, I was excited when immunocompromised people were scheduled to receive the COVID-19 vaccine in my state. As a lupus patient on immunosuppressants, I would be...Reactions0reactionsComments1 comments
Ultimate Lupus Survival GuideHaving lupus is very challenging. In fact, it can be downright overwhelming and difficult to handle day-to-day. The main thing that you have to learn to do from day to...Reactions0reactionsComments1 comments
Ethical Issues"Why won't you take my health insurance?" This is a question almost every patient has. Why can’t I see this wonderful doctor that I believe is a great doctor? It...Reactions0reactionsComments2 comments
Getting Support For Lupus While Going to CollegeI know that majoring in marine biology seems like a cliché, but I had a serious interest in the subject matter. As a child, I was fascinated with marine animals...Reactions0reactionsComments0 comments
What A World Built For Lupus Patients Would Look LikeAs a sick person in a world built for the healthy and able-bodied, I’ve often struggled to keep up with my peers who do not live with lupus. Occasionally, though...Reactions0reactionsComments2 comments
My COVID-19 Vaccine And How The First Dose WentPlease ask your medical professional if the vaccine is right for you. The following is my experience under the care of my physician. Over the last year and a half...Reactions0reactionsComments6 comments
Community Views: Tips for Those Newly Diagnosed With LupusReceiving a lupus diagnosis often leads to a big question: “Now what?” It is true that learning what life with lupus looks like can be an adjustment. Fortunately, we have...Reactions0reactionsComments1 comments
My Experience On BenlystaSo, I started Benlysta a few months back and I wanted to see how it does with my body. Again, my doctor did tell me that it did not work...Reactions0reactionsComments0 comments
Meditation and The Benefits It Can Offer UsI have mentioned in some of my previous articles that I use meditation as a big part of my self-care routine but I haven’t actually touched upon what meditation is...Reactions0reactionsComments0 comments
Moving Into My ApartmentSo, I did this thing where I moved into my own apartment and I had a really bad flare as soon as I moved in. This caused me to feel...Reactions0reactionsComments1 comments
Why I Am Grateful For My Sister and Her SupportDuring my most recent brush with death in 2018, my sister was right there by my side. In January 2018, I suffered from a very severe headache while driving. My...Reactions0reactionsComments0 comments
Ask The Advocates: Coping With Lupus FlaresLupus flares can cause swelling, skin rashes, and pain. Flares can also take a heavy toll on mental health. Many people living with lupus are silent warriors who feel uncomfortable...Reactions0reactionsComments2 comments