What Are Tips For Building a Good Lupus Doctor Relationship?A good doctor treats the whole patient. I am not talking about the philosophy held by many in holistic medicine. I am also not asking every physician to understand every...reactions3comments
Give Me My Life Back, LupusI want my old life back. Yes, I want my old life back. I want to be able to work and come home. I want to be able to help...reactions2comments
Amplifying Black Voices: How Healthcare Providers Can Better Serve the CommunityFor our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living with autoimmune conditions. Science shows that biases and...reactionscomments
Let’s Talk About Perfect Patient BurnoutI can’t recall what year in my lupus diagnosis I began feeling this way. It seemed the pressure was mounting with each specialist visit as more and more medication was...reactions15comments
A Day in the Life With Lupus: Evening and NightAround 5 pm, when my husband is done working, I usually take a break to rest before anything else. I’ll pass the care of our son on to him and...reactionscomments
Patient RightsWhen someone goes to the doctor, they believe they have the utmost respect from their doctors and they really do not. Imagine going to a doctor and they are telling...reactions1comment
5 R’s of Lupus to Get Through a Rough DayEvery day with lupus can present some difficult moments. One day you are on top of the world. The next day you are in the trenches fighting for your life. It...reactions8comments
When Is It Time To Change Rheumatologists?At the end of 2017, I realized that I needed to change my rheumatologist. The time leading up to that decision leave my rheumatologist of 14 years. That rheumatologist and...reactionscomments
Grief and Chronic IllnessThe year 2020 was not a good year for me at all. Grief was everywhere and everyone felt it. I was pregnant through the beginning of COVID. Remember that all...reactions2comments
What Are Mornings and Afternoons Like With Lupus?I start to register pain as soon as I wake up in the morning. It starts a bit slow, thanks to the drowsiness of sleep, but within a few minutes...reactions3comments
My COVID Vaccine Experience, Part 1After quarantining for 9 months, I was excited when immunocompromised people were scheduled to receive the COVID-19 vaccine in my state. As a lupus patient on immunosuppressants, I would be...reactions1comment
Ultimate Lupus Survival GuideHaving lupus is very challenging. In fact, it can be downright overwhelming and difficult to handle day-to-day. The main thing that you have to learn to do from day to...reactions1comment
Ethical Issues"Why won't you take my health insurance?" This is a question almost every patient has. Why can’t I see this wonderful doctor that I believe is a great doctor? It...reactions2comments
Getting Support For Lupus While Going to CollegeI know that majoring in marine biology seems like a cliché, but I had a serious interest in the subject matter. As a child, I was fascinated with marine animals...reactionscomments
What A World Built For Lupus Patients Would Look LikeAs a sick person in a world built for the healthy and able-bodied, I’ve often struggled to keep up with my peers who do not live with lupus. Occasionally, though...reactions2comments
My COVID-19 Vaccine And How The First Dose WentPlease ask your medical professional if the vaccine is right for you. The following is my experience under the care of my physician. Over the last year and a half...reactions6comments
Community Views: Tips for Those Newly Diagnosed With LupusReceiving a lupus diagnosis often leads to a big question: “Now what?” It is true that learning what life with lupus looks like can be an adjustment. Fortunately, we have...reactions1comment
My Experience On BenlystaSo, I started Benlysta a few months back and I wanted to see how it does with my body. Again, my doctor did tell me that it did not work...reactionscomments
Meditation and The Benefits It Can Offer UsI have mentioned in some of my previous articles that I use meditation as a big part of my self-care routine but I haven’t actually touched upon what meditation is...reactionscomments
Moving Into My ApartmentSo, I did this thing where I moved into my own apartment and I had a really bad flare as soon as I moved in. This caused me to feel...reactions1comment