Why I Am Grateful For My Sister and Her SupportDuring my most recent brush with death in 2018, my sister was right there by my side. In January 2018, I suffered from a very severe headache while driving. My...reactionscomments
Ask The Advocates: Coping With Lupus FlaresLupus flares can cause swelling, skin rashes, and pain. Flares can also take a heavy toll on mental health. Many people living with lupus are silent warriors who feel uncomfortable...reactions2comments
My Experience With Clinical TrialsBeing part of a clinical trial can be stressful because sometimes it is just new drugs being tested on you. Of course, everyone ends up feeling like a “guinea pig,”...reactionscomments
Food Journaling to Decrease FlaresWhat you eat can affect how you feel. Oftentimes, as we battle lupus, we are cognizant of what medicines we put in our bodies. We work hard to get the...reactions6comments
Going to School OnlineWhen going to college, it feels so great to go online rather than in-person. There are plenty of reasons why someone would go to school online rather than on campus...reactionscomments
Amplifying Black Voices: The Importance of Finding CommunityWhen you live with a chronic autoimmune condition, finding a community that understands is powerful. And, science backs this up. What is community? It is a group of people with...reactionscomments
Lupus Gives "Working Hard" a Different DefinitionI used to enjoy working hard. I loved the challenge of trying a new workout, cooking an elaborate meal, or volunteering in the university gardens. I found physical labor to...reactionscomments
My Chloroquine ExperienceChloroquine (Aralen) is a drug that treats malaria. Yes, you heard it right. Malaria! This drug can also be used to treat the autoimmune disease we all know named lupus...reactionscomments
Lessons Learned Being in High School and College With LupusI was diagnosed with lupus at the age of 16 after 4 to 6 years with unbearable and sometimes untreatable headaches. When I was diagnosed, in 1990, I was confined...reactions1comment
Interviewing My SiblingsI decided to interview my loving sisters to see what they thought of me and my mom dealing with lupus. This would be a major response since my sisters are...reactions1comment
Coping With Frequent UTIs and LupusI started to research everything I could about UTIs as I realized that I needed to do something fast! I read about cranberry juice and tablets which I had previously...reactionscomments
What It’s Like Being a Lupus WarriorMany people may wonder what it is like being a lupus warrior. It’s kind of hard to explain, but let’s give it a try. Below is a list of things...reactions2comments
My Benlysta ReviewWho would have known that a drug that works for many others would start with me so badly? I tried Benlysta, and of course, the injection burns as you are...reactions1comment
To the Moms Who Have to Take Medications During PregnancyI don't have the patience to read one more post from my birth group about how someone won't even take a Tylenol during pregnancy. Or, how they did take one...reactionscomments
Building a Good Healthcare Team With LupusKnow thyself. In 2004, I secured a law clerk position with a judge in Fulton County, Georgia. I certainly felt blessed because it is a competitive and prestigious position. During...reactionscomments
New Flare, Bad DayHaving random flare-ups can be a pain in my behind. I just had one today. I found myself slowly fading away. I would tell no one what was going on...reactionscomments
It's Okay To Not Be OkayToo many times lupus warriors wear masks. They wear masks to hide how lupus disfigures them. Yes, disfigure is a strong word. But honestly, that is what lupus does. It...reactions2comments
My Experience With the Mirena IUDMirena is a hormone-releasing IUD that prevents pregnancy for up to 6 years. It is also prescribed for women who have heavy periods up to 5 years. The pro, of...reactions1comment
Meals with MaggieFeeding yourself with a chronic disease can be exhausting. With limited energy and physical resources, we have to modify ways we perform regular tasks. Over the last few years, I’ve...reactions2comments
Support Groups"I don’t think it’s a benefit to talk to other people and post my business online," is what I hear others say. Sure that is their opinion. But some people...reactionscomments