It's Okay To Not Be OkayToo many times lupus warriors wear masks. They wear masks to hide how lupus disfigures them. Yes, disfigure is a strong word. But honestly, that is what lupus does. It...Reactions0reactionsComments2 comments
My Experience With the Mirena IUDMirena is a hormone-releasing IUD that prevents pregnancy for up to 6 years. It is also prescribed for women who have heavy periods up to 5 years. The pro, of...Reactions0reactionsComments1 comments
Meals with MaggieFeeding yourself with a chronic disease can be exhausting. With limited energy and physical resources, we have to modify ways we perform regular tasks. Over the last few years, I’ve...Reactions0reactionsComments2 comments
Support Groups"I don’t think it’s a benefit to talk to other people and post my business online," is what I hear others say. Sure that is their opinion. But some people...Reactions0reactionsComments0 comments
Navigating High-Risk Pregnancy During COVID-19Adding a child to your life with lupus is a big responsibility. And facing a high-risk pregnancy can be very intimidating. But COVID-19 has put even more weight on these...Reactions0reactionsComments0 comments
How to Protect Eyesight While Taking HydroxychloroquineIf you have lupus, taking care of your eyes can be especially important. Lupus itself can impact eye health, and the drugs used to treat lupus can also harm your...Reactions0reactionsComments0 comments
The Diets I Have Tried For LupusThe diets I have tried dealing with lupus always worked for me, and most of the time they were issued by my gym coach or by my doctor. The first...Reactions0reactionsComments0 comments
The Challenges of Driving With LupusDo you like to go for a relaxing drive in the country? Ten years ago, as a junior in college, that was one of my favorite ways to unwind. But...Reactions0reactionsComments5 comments
Cold Weather and Lupus: How To Be PreparedThe cold winter months are hard for many people, especially for those living with conditions like lupus. Sadly people who live with lupus are quite used to dealing with flares...Reactions0reactionsComments11 comments
Is it COVID or Lupus-Related? How to Work With Doctors to Really Get Proper CareIt can be difficult to determine what is lupus related and what is a sign of COVID. Let’s take shortness of breath for example. Many lupus warriors have experienced shortness...Reactions0reactionsComments2 comments
Friends, Support, And Lupus AwarenessWhen I returned to school in the fall after my diagnosis, some of the teachers and students knew about my experience in the hospital. I had nothing to worry about...Reactions0reactionsComments2 comments
Difficulties And Time Management With SchoolStarting school and being a mom has been a lot. It is like I did not know things at all years later. Some of my classes made me feel as...Reactions0reactionsComments0 comments
Be Gentle With Yourself As You Battle LupusLupus, some days are harder than others. Some days you have pain with every breath. Other days you are on top of the world feeling great. Every day, you have...Reactions0reactionsComments3 comments
Amplifying Black Advocate Voices: How Bias Has Affected My Patient JourneyBeing diagnosed with an autoimmune condition like lupus can take years. Many people report their early symptoms were dismissed by doctors or they were misdiagnosed. This delays treatment, which lets...Reactions0reactionsComments1 comments
How It All Is Meant To Be: My Friendship With Stevie, Part 1I was diagnosed with systemic lupus erythematosus in 1990 at the age of 16 after 4 to 6 years with unbearable and sometimes untreatable headaches. For years, my parents consulted...Reactions0reactionsComments0 comments
Research Uncovers How DNA Affects Lupus SeverityDoctors and researchers are just beginning to understand the genetics behind lupus. Doctors still do not entirely understand exactly what causes people to develop lupus. They think that some of...Reactions0reactionsComments2 comments
My COVID-19 ExperienceI had the scare of my life and I felt I should definitely be more cautious. I went to Atlanta for Christmas and New Year's to visit my mutual family...Reactions0reactionsComments2 comments
Reflecting on My First Skin RashWhen I was first diagnosed with lupus, I was just a kid. Being diagnosed with any disease is not what anyone would want. What is even more hurtful is the...Reactions0reactionsComments0 comments
Lupus.net Celebrates 1 YearIt is hard to believe that just 1 year ago, we launched Lupus.net. Happy anniversary to our community members! Lupus.net was created to cultivate a community for people living with...Reactions0reactionsComments0 comments
Later Menstrual Period and Long-Term Breastfeeding May Increase Lupus Risk in Black WomenA new study published in the journal Lupus has suggested that several factors related to reproduction may play a role in Black women’s risk of developing lupus. The researchers found...Reactions0reactionsComments0 comments