It's Okay To Not Be Okay
Last updated: March 2021
Too many times lupus warriors wear masks. They wear masks to hide how lupus disfigures them. Yes, disfigure is a strong word. But honestly, that is what lupus does. It disfigures your body with rashes and lesions, beats your emotions with fear, and strangles your mental health. Therefore, a lupus warrior puts on their masks to get through each day.
A message for lupus warriors
You are so brave to always push through even when you feel you can’t. Your courage from moment to moment is to be commended. Each day you are overcoming things that no one could even imagine. Emotionally, you may be drained and unavailable and filled with guilt because of it. Lupus is such a difficult and relentless disease.
Lupus doesn’t have to define you
Although lupus is hard, it doesn’t have to define you. It doesn’t have to make you feel any guilt or shame. Beyond what lupus tries to make you believe, you can still live a good life past it. You will have these moments when you feel overwhelmed and that’s okay. Other times, you will even feel like it’s not okay to not be okay. It can be a never-ending cycle.
It’s okay to not be okay
Hey, you are dealing with some serious lupus issues. So, lupus warrior, it’s okay to just have a day. You may have bouts of sadness and get upset with the changes in your life. It’s okay, your current health situation can get crazy. It’s okay not to be okay so you can deal with what’s going on. Don’t let lupus trick you into feeling like you can’t just be in those moments that are rough. Sometimes just to be is all you can do and that is okay.
It’s okay to just have a day. To simply stay alive and be. It’s also okay to just feed yourself some good food and wear some comfortable clothes and sit around the house. It’s okay to rest when you must and not feel bad about it.
Finally, it’s okay to struggle and not give up on yourself. It’s important to believe that it will get better. It’s of equal importance not to beat yourself up for feeling what you feel as you deal with lupus issues.
You should be proud of yourself for making it to your now. Love yourself and allow grace to consume you. Give yourself permission to feel it all so you can get to a little bit of healing. Remember, you are fighting a hard fight and it’s okay not to be okay.
How are you most likely to respond when someone offers you unsolicited advice about your lupus?