Building a Career as a Lupus WarriorHealth Union did a Lupus In America survey that revealed: "More than 6 in 10 people with lupus feel their lupus interferes with their ability to work." I have felt... By Negin Dadkhah2 min readBookmark for laterReactions0reactionsComments1 comments
Getting Disability After Getting a Denial LetterWhen I first had my kidney failure, I never thought that I could even get insurance because I was denied the first time around. I know it's overwhelming having all... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments5 comments
Migratory Joint Pain, Curbing the Pain, and a Potential FlareAll my joint problems, pain, or inflammation, have always been "migratory." This type of joint pain occurs with inflammation spreading from one joint to another at a time. In my... By Negin Dadkhah3 min readBookmark for laterReactions0reactionsComments2 comments
Retaining FluidMost people don’t know or will not understand how fluid retention starts, and also how you retain fluid. Well, my experiences have taught me to notice when I start to... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments1 comments
How Lupus Impacts Work and CareerLupus can affect many different areas of a person’s wellbeing. Physical symptoms, emotional stress, and mental health impacts can all take various tolls on quality of life. One area that... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Other Health Conditions Experienced Alongside LupusThe journey to receiving a lupus diagnosis can be a long one. The symptoms of lupus can be nonspecific and overlap with many other conditions. Because of this, it can... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments13 comments
Chest Pain and Shortness of BreathWhen dealing with lupus, I would not expect to have chest pain or even shortness of breath. However, I have had plenty of times where I have had chest pain... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments1 comments
My First Benlysta InfusionAt 7:45 a.m., I approached the medical staff stationed outside my doctor's office to have my temperature taken. My husband had just dropped me off for my first infusion treatment... By Ava Meena3 min readBookmark for laterReactions0reactionsComments0 comments
4 Items I Wish I Would Have Researched Before Moving CitiesMoving is a part of life. Whether it’s a new job, family, or circumstance. Moving is a hard reality of life. Many people research schools, crime, neighborhoods, etc. But having... By Maggie LoBue2 min readBookmark for laterReactions0reactionsComments0 comments
Lupus and Glandular FeverWhen I was 22 years old I got extremely sick with glandular fever. I still remember it so vividly. I had been to the gym for a workout and swim... By Charlotte Barnett2 min readBookmark for laterReactions0reactionsComments3 comments
Relationships With Lupus Healthcare ProvidersWe recently surveyed hundreds of people with lupus for our 2020 Lupus In America survey. We asked about all aspects of life with lupus, including healthcare and the relationship people... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments3 comments
Ease Joint and Muscle Pain With LupusNine times out of 10, when you are having a flare-up, they start to attack your joints first. Sometimes you can’t notice the symptoms because it seems like a normal... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments0 comments
Preparing to Start Infusion Treatment for LupusFor over 50 years, there were only 3 FDA approved drugs for lupus: hydroxychloroquine, corticosteroids, and aspirin. Other medications, such as immunosuppressants and chemotherapy, have been used off-label to successfully... By Ava Meena3 min readBookmark for laterReactions0reactionsComments0 comments
Top Lupus Symptoms Include Joint Pain and FatigueLupus can present with many different symptoms and experiences. No two paths with lupus are the same. Differences in severity of symptoms, age of symptom onset, time to diagnosis, and... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments2 comments
Lupus: Immunity and InsectsSummer. The time I year I bask in the sun. I am one of the lucky ones, even with all the medications I take, I do not have sun sensitivity... By Maggie LoBue3 min readBookmark for laterReactions0reactionsComments10 comments
When Lupus Limits Physical AffectionDo you know what my husband needs? A hug. A reassuring hand on his arm. A gentle back rub. All simple physical gestures, and all too frequently beyond my ability... By Ava Meena2 min readBookmark for laterReactions0reactionsComments2 comments
Changing My Diet With LupusEveryone living with lupus is different. However, I have found that making a few changes to my diet has helped improve my health. In my experience, my lupus improves when... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments0 comments
What Is Undifferentiated Connective Tissue Disease?Undifferentiated connective tissue disease (UCTD) is a term given to an autoimmune disease affecting the connective tissue. Autoimmune diseases occur when your body’s defense system, the immune system, is too... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments2 comments
Expectation vs. Reality: The Impact of Lupus on Quality of Life“But you don’t look sick,” is what so many people living with lupus are told. Our 2020 Lupus In America survey revealed what it is like to live with a... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments6 comments
The Unlikely Story of a Lucky Diagnosis, Part 2Editor’s note: This is the second article in a 2-part series. The first is “The Unlikely Story of a Lucky Diagnosis, Part 1” I was diagnosed with stage 4 lupus... By Negin Dadkhah3 min readBookmark for laterReactions0reactionsComments1 comments