Unexpected Lupus FlareWhen I flare I’ll usually feel pain on my right hip or stiffness in my hands. But, this time I was feeling...reactions8comments
My Newest Symptom: CostochondritisAt the beginning of last year I noticed a new symptom that I’ve never experienced before. I remember I was driving at...reactions9comments
Dear Lupus, I Declare VictoryDear Lupus, What is your problem? Sometimes, you try to make this life so difficult. You get on my last nerve and...reactionscomments
Are You Self-Gaslighting on Your Lupus Journey?Living with this chronic pain always has me questioning my body on my lupus journey. The chronic nature makes me more aware...reactions12comments
Lupus Awareness Month 2022: Self-Care MattersMay is Lupus Awareness Month! While awareness is not limited to one month, all of May we will be sharing stories, starting...reactions2comments
Community Views: What Lupus Fatigue Feels LikeFatigue is an intense feeling that many people do not fully understand until they are living with it. Fatigue is very different...reactions22comments
What Does It Mean to Live With Lupus?Lupus is an autoimmune disease. This means parts of the immune system attack the body. It is challenging for the body to...reactions2comments
Nurturing Roots: Healthy Hair Care MattersI remember combing my hair and clumps being pulled onto the comb. Washing my hair and it just falling out in my...reactionscomments
Motivation Struggles With Chronic IllnessI am exhausted. At first, I thought it was just fatigue towards the tedium and permanence of chronic illness chores, but it’s...reactions6comments
Lupus and More Lung IssuesHaving lupus means you have multiple appointments throughout the years. Not only with your rheumatologist but with the rest of your care...reactions3comments
How To Stay Healthy While On ImmunosuppressantsEvery night, I count out a handful of pills. Six of these pills, which are prescribed by my rheumatologist to keep my...reactions6comments
My First Ethical Question Mark with Chronic Illness CompensationI’ve been sharing my life with chronic illness openly online since nearly the moment my symptoms started happening. Sometimes it might look...reactions1comment
Things Out of Your ControlEver since I got my lupus diagnosis, my planning skills have excelled to the max - especially when it came to vacations...reactionscomments
Doodling My Way To Wellness Beyond LupusDoes anyone remember as a child how you would just sit and doodle? We would doodle during class getting out nervous energy...reactionscomments
How to Survive the Holidays with LupusThe winter holidays conjure images of snowmen and candy canes, presents wrapped under a tree or beside a Menorah, and plates piled...reactionscomments
The First Time Someone Glared At Me For Using a Handicapped PassThe first time someone gave me a dirty look for using a handicapped pass happened in the grocery store parking lot. I...reactionscomments
Losing Friends and Family Because of LupusOne of my most painful days with lupus wasn’t a day when my joints were swollen or when my fatigue was overwhelming...reactions17comments
Road Trip Essentials for Lupus WarriorsMy husband and I recently purchased a car so now I’ve been planning several road trips for the future. But, living with...reactionscomments
Amplifying Black Advocate Voices: How Bias Has Affected My Patient JourneyBeing diagnosed with an autoimmune condition like lupus can take years. Many people report their early symptoms were dismissed by doctors or...reactions1comment
Amplifying Black Voices: How Healthcare Providers Can Better Serve the CommunityFor our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living...reactionscomments
