Living

“I am just so over being sick and tired!” I want to scream but instead I’m sitting in my room, holding my breath, while angry tears silently roll down my...

Living with lupus can be very challenging. When I was diagnosed I had to learn so many things on my own. No one in my family had lupus or any...

Picture this: The clock strikes midnight and everyone in my home is embraced in slumbers arms. I’m all tucked in the bed, ready to dive deep into dreamland. I’ve got...

My cleaning tips help me keep my home cleaner, but not sparkling clean. In my opinion, it’s not realistic to have a clean home when you have a chronic illness...

Very Unpopular Opinion: It’s time to stop telling people with chronic illness “You can do hard things.” It is not only carelessly overused and cliché, but it can also be...

In the early days of having lupus, it was a constant struggle for me just to be heard. This included health professionals, my employer and even with friendships and relationships...

There are several medications that people with lupus take as treatments. The most common are pills which are taken orally and then there are monoclonal antibodies which can be given...

They say jealousy is the green-eyed monster. Which is pretty much correct. However it is a NORMAL human reaction/feeling. So why am I talking about jealousy here? Let me give you...

I recently noticed some changes on my right breast. Of course, as soon as I noticed this, my heart sank and my mind went into overdrive assuming the worst-case scenario...

It’s hard living with lupus. It takes patience and understanding. I love words and I had to learn to talk to myself a certain way that helped me defeat lupus...

Having lupus is a full-time job with no pay and no benefits. Thankfully, many are still able to work. So, most of us have to work part- or full-time in...

Sometimes it’s good to talk to your doctors if they will take the time to understand your story. In the past, I've had doctors who tended to be brutally honest...

Living with lupus brings many challenges. Odd and unexpected symptoms arise. People with lupus may not be prepared for these strange symptoms. Sharing experiences is helpful for everyone. Members of...

Traveling always triggers my chronic fatigue. The long wait at the airport, having to stand in line, and carrying a suitcase all zap my energy. At home, I can use...

Before I developed lupus, I used to love being in the sun and getting a tan. It does make me cringe when I look back and remember how I would...

Date nights are a bit different now with my diagnosis. Before we used to just go out all spontaneous, at a spur of the moment and decide "let’s try this...

My personal balance between patient and person has been going in the wrong direction lately. I’ve never felt like the balance was perfect, even though my lupus diagnosis was 6...

For most of us with lupus, chronic fatigue is unfortunately here to stay. My own chronic fatigue makes it especially difficult to do household chores. After waking up exhausted and...

Traveling is stressful for anyone. Making sure you get everything in your bags. Even though you know you will inevitably leave something at home. Usually something that’s important. Even after making...

A first date with a new romantic interest is enough to make anyone nervous. A dozen questions and insecurities jumble around in your mind. Will they look like their online...