“But You Don’t Look Sick”The thing about living with a sometimes-invisible disease is that it sort of feels like it's you against the world. You're living with this secret, this shadow, this double-life —...reactionscomments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency...reactionscomments
4 Self-Advocating TipsWhen suffering from such a mysterious illness, you are often required to see multiple doctors that specialize in different things. I can definitely get a little messy at times. This...reactionscomments
At-Home Devices That Can Monitor Your HealthAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data...reactionscomments
It Is Hard to Have Fun in the Sun With LupusThroughout my life, one of my all-time favorite sensations has been feeling the warmth on my skin from rays of sunshine. I love feeling warm from head to toe. Growing...reactions7comments
Don’t Stress Your Next FlareYou know what it is like. You’ve had a really good day, or perhaps week. Everything is going your direction and you feel you finally have a handle on your...reactionscomments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower...reactionscomments
The Strobe Light of Chronic Illness – How Others See Only Small SnapshotsI was watching a cop show the other day and one of those obligatory, “drug addled-club goers rave” scenes came on. You know, the one that shows what Hollywood thinks...reactionscomments
Dry, Cracked, and Very ParchedA few years ago, I presented with blurry vision and a weird sensation of people moving away from me while I looked at them. The best way I can describe...reactionscomments
In America: What's That?The In America survey is now closed. Are you one of the millions of people dealing with lupus? We know how much lupus can impact your life – and we...reactionscomments
From Being a Social Worker to Needing OneGentle greetings, I’m Lina T. These are a couple of layers of my health journey. I was already a widow in my late 20’s and I had the courage to...reactions7comments
Living with Discoid LupusDiscoid lupus can affect any person's emotional aspect of life. You ask yourself if you are beautiful enough; will you love yourself so others can love you? Will others be...reactions17comments
A Look at the Services Virtual Care OffersTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor to find out which virtual services are right...reactionscomments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update...reactions4comments
The Unlikely Story of a Lucky Diagnosis, Part 1It was the fall of 2002. I was 15 and had just started high school at a new school in my hometown of Tehran, Iran. I wanted to make new...reactions1comment
Telehealth 101: How to Visit Your Doctor OnlineTelehealth is a virtual service that lets patients interact with a healthcare professional online. This lets doctors and patients connect without being in the same room, or even the same...reactionscomments
How Do I Find Virtual Health Services?It can be overwhelming to figure out how to find telehealth services, especially if you do not already have a doctor. But many companies offer a range of virtual health...reactionscomments
What to Avoid if You Have LupusWhen living with lupus, flares are a cause for worry. You may find yourself wondering: what can I do to help avoid flares and live as normally as possible? Fortunately...reactions22comments
Spousal Support and LupusImagine being with someone that loves you for you and not for what you could do for them. Someone that loves you through thick and thin no matter what you...reactions2comments
12 Tips for Dressing with LupusLupus has its challenges and nothing is more disheartening than not having the basic human functions on a flare day. Flares can range from mildly uncomfortable to the “stone mummy”...reactions10comments
