FeaturedActive 7 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments179 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions 0 reactions Comments5 repliesCaregiving
Active todayDiscontinue medsI have had Lupus for about 12 years. My doctor took me off of Imuran because of cirrhosis secondary to NASH. I take Plaquenil. I’ve been to a gastroenterologist, test...Reactions 0 reactions Comments2 replies
Active todayTriggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions 0 reactions Comments72 repliesButterfly RashFatigueSun Sensitivity
Active yesterdayChronic UTI’s & lupus nephritis I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...Reactions 0 reactions Comments19 repliesSymptoms
Active yesterdaySleep HabitsHow well do you sleep at night? What are your tricks to help you sleep better?...Reactions 0 reactions Comments39 repliesSleep
Active yesterdayTaking notes to the doctor.I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...Reactions 0 reactions Comments4 repliesBrain FogTips & AdviceHealthcare Team
Active yesterdayGo to exerciseIf you can exercise what is your go to exercise? What movement gives you endorphins big enough that you feel a little better?...Reactions 0 reactions Comments15 repliesExercise
Active 6 days agoDiagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us. If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...Reactions 0 reactions Comments6 repliesAwarenessDiagnosis
Active 6 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments41 repliesCopingJoint PainSymptoms
Active 7 days agoDiagnosed TodayHello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...Reactions 0 reactions Comments6 repliesDiagnosisSymptoms