Sick, Tired and Beyond Fed UpI've been off work since March. Spent a lot of time back and forth to the doctor. The first few times they...reactions12comments
MaureenI live alone with my little dog , unfortunately my two children are a distance away and are not keen on looking...reactions2comments
My Systemic Lupus StoryIn the past year my lupus has progressed to arriving monthly. The Prednisone isn't as effective as in the past. Although I...reactions2comments
Has Anyone Used Medical Marijuana?I am just wondering if anyone has used medical marijuana and if so did it help with pain and symptoms? If was...reactions5comments
Hello & Positive Energy from New ZealandIt is spring here in New Zealand and my garden is full of roses daisies & foxgloves bees bumble bees & birds-...reactions2comments
Meds Questions?I just read about two medications... belimumab and anifrolumab. Is anybody taking these meds, they seem to have severe side effects. Is...reactions2comments
In Sickness and In Health?Diagnosed with Lupus in 2012 after the loss of my son. My ex-husband stated I wasn't doing enough to take care of...reactions3comments
Finding Out More About LupusOK I have found out in this past month. My lupus has also effected my eyes. I now have Macular degeneration, did...reactions10comments
Is it Lyme Disease or Lupus?Hello I’m 29 years old I was diagnosed with lupus when I was 22. I’ve been healthy my childhood and teen life...reactions3comments
It Started With a RashI broke out with a rash on April 22 2023. My doctor tested for everything. They asked me if I had ever...reactions1comment
Is This Lupus?Hey everyone, I was recently diagnosed with lupus due to symptoms. But all blood work results, etc. have come back negative. Does...reactions1comment
ANA Positive, What's Next?I've been experiencing lupus symptoms for a while now. It started with itchy skin, followed by joint pain and inflammation that gradually...reactions9comments
Diagnosed with Lupus One Month AgoI broke out with a skin rash on April 22. I couldn't keep anything down at the time and still can't. I...reactions6comments
Fear and HopeAt the end of last July, I had a very difficult breakup. Just weeks later, I was in the hospital, so sick...reactions2comments
Purple Skin PatchI am about to enter month 5 after receiving my lupus diagnosis. I will, again, be going to the Doctor, as my...reactions1comment
My Lupus Plus JourneyHi I’m Saundra, I have had my SLE diagnosis for 43 years now. I am 63 years old. There is nothing on...reactions3comments
"I Feel Like It's Unfair"I was diagnosed with SLE a little over a year ago. At the time I was also diagnosed with Sjogrens and Alopecia...reactions1comment
Lupus Has Hurt MeI have the worst-case scenario of lupus... lupus as well as a brain tumor. The lupus has caused severe pain in my...reactions10comments
Lupus Flare UpI've suffered since 2004 with joint pain and muscle spasm’s. A hug hurt. My grandson was two and when he would run...reactions2comments
Still No AnswersStill no diagnosis for me... I have even given up going to my GP as it's just a waste of time as...reactions6comments