Long Journey With Lupus and Other Autoimmune ConditionsI was diagnosed with SLE lupus, RA, fibromyalgia, among other autoimmune diseases back in 2004. Through the years, I have dealt with many issues, including having silent, as well as...Reactions0reactionsComments1 comments
ANA Is Negative: What Is Next?I was diagnosed with lupus in December of 2020. I was in extreme pain for years before that. I went to every scheduled doctor's appointment. Every time I have expressed...Reactions0reactionsComments3 comments
A New JourneyI don't know if I shared my story when I signed up in 2021. If I did, since so much has changed and so much is different and has been...Reactions0reactionsComments1 comments
Still LearningAbout to start month 3 of my Lupus and RA journey and although I am only 59, some days I feel ancient! I am learning daily what triggers my flares...Reactions0reactionsComments10 comments
My Life As a Lupus WarriorI'm 65, and was diagnosed in 1987 first with discoid lupus erythematosus (DLE). A few years later with systemic lupus erythematosus (SLE), degenerative bone and muscle disease, fibromyalgia, and arthritis...Reactions0reactionsComments1 comments
LoopyI was a first-grade teacher and was diagnosed in 2015. I had all these aches, feeling tired all the time, and I was forgetting everything. I would come home, take...Reactions0reactionsComments2 comments
And Then Came LupusAfter many years of getting ill even as a child, lupus should not have been a surprise dx. Fast forward to when I turned 59, still a Clinical Special Education...Reactions0reactionsComments4 comments
Lupus After RetirementI developed Rheumatoid arthritis in my early 40's. I was working as a nurse and many days it was difficult to even get out of bet to get to work...Reactions0reactionsComments1 comments
There Is Something WrongI began experiencing headaches in fall of 2013. Suspected sinus infection, so antibiotics given, headaches did not go away. In December, I tested positive for MRSA in my nose. One...Reactions0reactionsComments0 comments
Lupus: The Great EqualizerI was diagnosed with Lypus, RA, and Fibromaylia. I'm a marine veteran who served proudly. I could run far and do anything. Now, my life has changed drastically. I'm lucky...Reactions0reactionsComments0 comments
ExhaustedSince being diagnosed three days before Christmas in 2017, it has been extremely exhausting. It had gotten to the point where it was all I could do to go to...Reactions0reactionsComments2 comments
Me and LupusHello I’m Gina. I was diagnosed with Lupus in 1999. I told my doctor between me, him, and God, we will handle this. I went through months of joint pain...Reactions0reactionsComments2 comments
My Lupus StoryIn 2010 I was experiencing chest pains & fatigue. I thought had the flu or a bad cold. Went to my PCP who then told my mom get me to...Reactions0reactionsComments2 comments
Cooking Helps Me RelaxBelieve or not but my way of getting my mind preoccupied when in a flare, is cooking. I cook and add music to the mix and it is so therapeutic...Reactions0reactionsComments6 comments
Mom of Lupus WarriorLupus was introduced to our family when my young niece was diagnosed at just 8 years old with SLE/Lupus Nephritis. Sadly, she recently passed away at 23 years old from...Reactions0reactionsComments1 comments
My Daily StrugglesI started showing signs of the spots right after my son was born in 1995 but didn't get diagnosed to tell 2001 or 2002 when they finally did a biopsy...Reactions0reactionsComments1 comments
Change for the BetterI grew up in a happy family, with few health concerns. I had big dreams for the future, and had just finished my freshman year of my undergrad degree when...Reactions0reactionsComments1 comments
Is It Lupus?I have an autoimmune illness that no one's sure of. Is it Churg Strauss, Vasculitis or? Or Lupus? Here's what I know, lupus has been identified in blood tests but...Reactions0reactionsComments1 comments
Where Do I Go From Here?I'm about to be 41, and I got my positive ANA results in March. Looking at the symptoms and old blood work, it is possible that I've had lupus since...Reactions0reactionsComments1 comments
Lupus and CancerIt was discovered that I have lupus while the doctors were searching for the tumor that they eventually located in my pancreas. Unfortunately, the symptoms of lupus and neuroendocrine cancer...Reactions0reactionsComments3 comments