Stories

About to start month 3 of my Lupus and RA journey and although I am only 59, some days I feel ancient! I am learning daily what triggers my flares...

I'm 65, and was diagnosed in 1987 first with discoid lupus erythematosus (DLE). A few years later with systemic lupus erythematosus (SLE), degenerative bone and muscle disease, fibromyalgia, and arthritis...

I was a first-grade teacher and was diagnosed in 2015. I had all these aches, feeling tired all the time, and I was forgetting everything. I would come home, take...

After many years of getting ill even as a child, lupus should not have been a surprise dx. Fast forward to when I turned 59, still a Clinical Special Education...

I developed Rheumatoid arthritis in my early 40's. I was working as a nurse and many days it was difficult to even get out of bet to get to work...

I began experiencing headaches in fall of 2013. Suspected sinus infection, so antibiotics given, headaches did not go away. In December, I tested positive for MRSA in my nose. One...

I was diagnosed with Lypus, RA, and Fibromaylia. I'm a marine veteran who served proudly. I could run far and do anything. Now, my life has changed drastically. I'm lucky...

Since being diagnosed three days before Christmas in 2017, it has been extremely exhausting. It had gotten to the point where it was all I could do to go to...

Hello I’m Gina. I was diagnosed with Lupus in 1999. I told my doctor between me, him, and God, we will handle this. I went through months of joint pain...

In 2010 I was experiencing chest pains & fatigue. I thought had the flu or a bad cold. Went to my PCP who then told my mom get me to...

Believe or not but my way of getting my mind preoccupied when in a flare, is cooking. I cook and add music to the mix and it is so therapeutic...

Lupus was introduced to our family when my young niece was diagnosed at just 8 years old with SLE/Lupus Nephritis. Sadly, she recently passed away at 23 years old from...

I started showing signs of the spots right after my son was born in 1995 but didn't get diagnosed to tell 2001 or 2002 when they finally did a biopsy...

I grew up in a happy family, with few health concerns. I had big dreams for the future, and had just finished my freshman year of my undergrad degree when...

I have an autoimmune illness that no one's sure of. Is it Churg Strauss, Vasculitis or? Or Lupus? Here's what I know, lupus has been identified in blood tests but...

I'm about to be 41, and I got my positive ANA results in March. Looking at the symptoms and old blood work, it is possible that I've had lupus since...

It was discovered that I have lupus while the doctors were searching for the tumor that they eventually located in my pancreas. Unfortunately, the symptoms of lupus and neuroendocrine cancer...

It took 29 years to definitely be diagnosed with systemic lupus. I was nearly 31, (1979) when I was pregnant with my second daughter. Lupus was questioned due to toxemia...

I was diagnosed with lupus in 2021 after 5 long months of pain and no answers. It was a relief to at least have a diagnosis. However, there’s been a...

I would describe myself as a miracle; a determined person who has overcome and survived many physical, emotional, and financial setbacks in life. If I was an animal, I would...