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Read conversations, start a discussion, and connect with others about Lupus.

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...

Say it to yourself

If you could tell your pre-diagnosis self something that can help you today, what would it be?...

Bullous Systemic Lupus Erythematosus

I was diagnosed with Lupus (SLE) several years ago. Almost 3 months ago, I had an outbreak of blisters appear on my face AND my vulva. The doctor also said...

Vivid, nightly, disturbing dreams

I have had Lupus all my adult life, now aged 87, was put in Depression bóx' in my 30's and was not correctly diagnosed until i was in my 60's...

Undiagnosed and meeting with primary care. Feeling nervous.

Hello. I have had odd symptoms on and off over the years but recently I put them all together and now wonder if it could be lupus. I'm hitting many...

Too long to tell..a very difficult disease

The madness of systemic lupus is incredibly complicated....

RA Killed My Sex Drive and My Relationship

A couple of years ago, it was like someone flipped a switch inside me and turned off my sex drive. I didn't know what was wrong with me. My doctor...

Nailed it 🥹

How many of you have issues with your toenails or fingernails? Do your toenails fall off or do you have weak and fragile fingernails? How does your doctor handle this?...

Nails

My nails are black My demotologist prescribed antibiotic due to a fungus. My hands itch like fire at night. I've been taking allergy medication has helped. Why, is blood levels...

Lupus and grand Mal seizure

I experienced a grand Mal seizure. I have tested positive for ana antibodies. I have psoriasis and psoriatic arthritis. Neurological tests(brain mri,eeg,CT scan,etc) are negative. I know there could be...

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