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Read conversations, start a discussion, and connect with others about Lupus.

Take charge

Don't let Dr tell you what to be on you tell them. It's your body and your pain and your lupus journey. It's not there's and your the boss....

Lupus recurring after numerous years of remission

Good Afternoon, All. I'm hoping for some validation. In 1973 I was given Azo Gantrisin for a UTI. I quite quickly developed a butterfly rash, joint pain and extremely fatigued...

Pregnancy and lupus nephritis

Hey everyone Just wondering if anyone has gone through pregnant while having lupus nephritis? And what was your journey like Thanks in advance. X...

How are your Flares?

I recently had one of the worst flares I have ever had. However, I kept questioning if I just had a stomach bug or if it was a flare. As...

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...

Rarely seem totally well

I have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days a week in bed) and Imuran (fatigue, mouth...

LUPUS

LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands ache or throb constantly, loss of balance, alopecia...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

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