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Read conversations, start a discussion, and connect with others about Lupus.

Skin sensitivity

Hi Everyone! Sooo i have SLE, as well as a multitude of other autoimmune diseases (I’m basically collecting them like Pokémon now)...

Brain fog and fatigue

Hi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but...

Lupus Awareness

Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on...

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a...

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

How do you handle the heat when wearing so much clothes?

Clothing choices Cooling devices Tips on how to deal with heat and sun....

My diagnosis 24 years ago

My diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high...

Lupus and Covid

I've have Lupus and add all my vaccines. I'm 77 and have had Lupus for 20 years. I'm on Day 2 of...

Testing for crazy stuff

My old doctor diagnosed me with lupus and told me that he wouldn't give me any of the pills because they would...

What do I tell my Boss

At work I am constantly overwhelmed and not sure what to tell my supervisor, when I’m good to do my job but...

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