Is there a connection between narcolepsy and lupus?I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...Reactions0reactionsComments1 repliesFatigue
Change on seasons How do you all handle the changing seasons? The weather can definitely affect our bodies so how have you all learned to combat any issues that come along?...Reactions0reactionsComments2 repliesCoping
Planquenil allergy?Does anyone have itchy inflammed eyes after 6 weeks of planquenil? I have been diagnosed with Lupus about 8 weeks ago, and have been on Planquenil. Doctor wants to switch...Reactions0reactionsComments2 replies
Need Advice I was diagnosed with lupus, mixed connective tissue disease and Raynaud Disease in 2019 after my daughter became bedridden for a year and after several doctors said there wasn't anything...Reactions0reactionsComments3 replies
Vertigo I am having extreme vertigo and get nausea and my arms will feel firey hot. Is this familiar to any of you? Thanks....Reactions0reactionsComments16 repliesSymptoms
Cold Weather I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...Reactions0reactionsComments16 repliesJoint PainWeatherFatigue
Antibiotics Is anyone else on antibiotics due to all the meds they take? I find my self now getting yeast infections and thrush due to steroids and antibiotics. Just wondering? If...Reactions0reactionsComments1 replies
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Benlysta vs MethotrexateHello, I was diagnosed about a year ago (last October) and have been on hydroxychloroquine and supplementing with prednisone for flare ups. My flare ups are now fairly frequent and...Reactions0reactionsComments1 repliesTreatmentSide EffectsTips & Advice
DietAnyone on a special diet to help with flareups?...Reactions0reactionsComments1 repliesAnemiaBrain FogCaregiving