Spring TimeHow is everyone who is coming into spring handling the pollen? Has allergies been bothering you? ~Racquel~ lupus.net team member...reactions8repliesSymptoms
Take charge Don't let Dr tell you what to be on you tell them. It's your body and your pain and your lupus journey. It's not there's and your the boss....reactions2replies
Lupus recurring after numerous years of remissionGood Afternoon, All. I'm hoping for some validation. In 1973 I was given Azo Gantrisin for a UTI. I quite quickly developed a butterfly rash, joint pain and extremely fatigued...reactions1replyTips & Advice
How are your Flares?I recently had one of the worst flares I have ever had. However, I kept questioning if I just had a stomach bug or if it was a flare. As...reactions5repliesSymptoms
Is there a connection between narcolepsy and lupus?I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...reactions3repliesFatigue
LUPUS LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands ache or throb constantly, loss of balance, alopecia...reactions2repliesFatigueSymptoms
Cold Weather I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...reactions16repliesWeatherJoint PainFatigue
Fatigue!There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...reactions1replyCopingFatigue
3 Questions - Do You Relate?"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...reactions8repliesMental HealthSleepBrain Fog
Say it to yourselfIf you could tell your pre-diagnosis self something that can help you today, what would it be?...reactions3repliesCopingTips & Advice