benlystai did 4 treatment of the iv infusion and lost all my hair and Im devestated and my doctor said it wasnt that and i told her im not taking...reactions5repliesAwareness
When to go to the ER.... I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...reactions26repliesSymptomsDiagnosisTreatment
DiagnosisI am newly diving in to the possible diagnosis of Lupus. I have MANY correlating and debilitating symptoms. My pcp has ordered lab work and it is pending. I have...reactions1reply
BENLYSTAI am wondering if there's anyone on the medication BENLYSTA? And what side effects you experiencing. My son's doctor is recommending it take it. When I read, side effect being...reactions1reply
No insurance no doctor supportMy daughter is dealing with lupus and has no insurance and doctors over the years have pretty much ignored her feelings, can't afford treatment, can only work ocassionally, afraid meds...reactions5repliesDiagnosisCaregiving
Spring TimeHow is everyone who is coming into spring handling the pollen? Has allergies been bothering you? ~Racquel~ lupus.net team member...reactions8repliesSymptoms
Take charge Don't let Dr tell you what to be on you tell them. It's your body and your pain and your lupus journey. It's not there's and your the boss....reactions2replies
Lupus recurring after numerous years of remissionGood Afternoon, All. I'm hoping for some validation. In 1973 I was given Azo Gantrisin for a UTI. I quite quickly developed a butterfly rash, joint pain and extremely fatigued...reactions1replyTips & Advice
How are your Flares?I recently had one of the worst flares I have ever had. However, I kept questioning if I just had a stomach bug or if it was a flare. As...reactions5repliesSymptoms
Is there a connection between narcolepsy and lupus?I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...reactions3repliesFatigue