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Bullous Systemic Lupus Erythematosus

I was diagnosed with Lupus (SLE) several years ago. Almost 3 months ago, I had an outbreak of blisters appear on my face AND my vulva. The doctor also said it was far up into my cervix. More blood work & I had positive marker for RNP/Smith; which manifests itself as Bullous Systemic Lupus Erythematosus. It's horrible. 10 weeks & I'm just now starting to see improvement after higher doses of Prednisone & starting Methotrexate. Has anyone else had (or heard of) this?
Thanks for reading.

  1. Well, first off, , OUCH! That does sound incredibly inpleasant and painful!

    I didn't find any conversations on this site about Bullous Systemic Lupus Erythematosus, unfortunately. That doesn't mean that someone within this community hasn't dealt with it and I do hope any members familiar with it will chime in here.

    The prednisone should help with the pain and inflammation and hopefully, the methotrexate will bring the inflammation truly under control so you can get some lasting relief!

    Best, Erin, Team Member.

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