Bullous Systemic Lupus Erythematosus
I was diagnosed with Lupus (SLE) several years ago. Almost 3 months ago, I had an outbreak of blisters appear on my face AND my vulva. The doctor also said it was far up into my cervix. More blood work & I had positive marker for RNP/Smith; which manifests itself as Bullous Systemic Lupus Erythematosus. It's horrible. 10 weeks & I'm just now starting to see improvement after higher doses of Prednisone & starting Methotrexate. Has anyone else had (or heard of) this?
Thanks for reading.
Well, first off,
, OUCH! That does sound incredibly inpleasant and painful!
I didn't find any conversations on this site about Bullous Systemic Lupus Erythematosus, unfortunately. That doesn't mean that someone within this community hasn't dealt with it and I do hope any members familiar with it will chime in here.
The prednisone should help with the pain and inflammation and hopefully, the methotrexate will bring the inflammation truly under control so you can get some lasting relief!
Best, Erin, Team Member.Hi
, I just wanted to check in and ask how you're doing. I can hear what a painful, frustrating, and difficult time it has been with the Bullous Systemic Lupus Erythematosus flare up. While I personally can't speak to it, I do hope that any of our community members with experience find your post here and chime in. In the meantime, I was able to find this information about it from the National Library of Medicine, https://www.ncbi.nlm.nih.gov/books/NBK557445/. Please know that we are thinking of you. Sending you gentle hugs. -- Warmly, Christine (Team Member)
