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Read conversations, start a discussion, and connect with others about Lupus.

Take charge

Don't let Dr tell you what to be on you tell them. It's your body and your pain and your lupus journey...

Lupus recurring after numerous years of remission

Good Afternoon, All. I'm hoping for some validation. In 1973 I was given Azo Gantrisin for a UTI. I quite quickly developed...

How are your Flares?

I recently had one of the worst flares I have ever had. However, I kept questioning if I just had a stomach...

LUPUS

LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times...

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do...

Say it to yourself

If you could tell your pre-diagnosis self something that can help you today, what would it be?...

Bullous Systemic Lupus Erythematosus

I was diagnosed with Lupus (SLE) several years ago. Almost 3 months ago, I had an outbreak of blisters appear on my...

Vivid, nightly, disturbing dreams

I have had Lupus all my adult life, now aged 87, was put in Depression bóx' in my 30's and was not...

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