Insomnia with Saphnelo?Do you experience insomnia with Saphnelo? I do and can be up for 24 hours after the infusion....Reactions0reactionsComments2 repliesSide EffectsSleep
Dr won't look at me while he's talking My Rheumatologist won't look at me when he's talking. Does that mean he doesn't care? I just think it's strange!...Reactions0reactionsComments1 replies
Red Light TherapyI was wondering if anyone on here has tried the Red Light Therapy. I have but then I also react to the sun so I didn't know if the Red...Reactions0reactionsComments2 repliesJoint PainSun SensitivityTips & Advice
Perception ChangeHow has your perception of lupus changed over time?...Reactions0reactionsComments0 repliesAwarenessTips & Advice
New NormalSo is this my new normal? Some kind of pain everyday? Are there ever days when you are pain free and feel like you did before being diagnosed? It's very...Reactions0reactionsComments4 repliesDiagnosis
Help me, Lupus patient with questions Hey. I’m new here so I don’t know how this really works, so bare with me. I was diagnosed with Lupus and Sjogren’s syndrome. After years of going through absolute...Reactions0reactionsComments16 repliesSymptoms
Test ResultsI have recently been experiencing arthritis and weakness in my hand. So I went to the doctor and she ordered labs to see if it was RA. The results came...Reactions0reactionsComments5 repliesAnxiety
Men with lupus I just want to know how many men have lupus or am I alone here? ...Reactions0reactionsComments9 repliesAwarenessDiagnosisCoping
Plant Based DietHi, Hope everyone is having a good day. I just have a question for my fellow warriors. Does anyone follow Dr Goldners advice/diet? If so, how is it working for...Reactions0reactionsComments1 replies
Coping Depression loneliness falling Yup fell don't know what happened it was like I passed out. Im having so much fun not really. Thank you so much for making me feel...Reactions0reactionsComments6 replies