Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Lupus related??

I was diagnosed with alopecia when I was 14 — still have random flare ups (27 now). Have always dealt with this skin issue. The spots appear raised and pink/red...

Depression and anxiety and dealing with family

I’m struggling soo bad some people in my family are saying hurtful things and I just can’t help myself from crying being upset is not helping me I just have...

The link between Lupus and Sjogren’s

I have had Sjogren’s and Sarcoidosis for 20 years along with Breast Cancer, Hodgkin’s Lymphoma and 2 courses of Non Hodgkin’s Lymphoma. None of the usual drugs have worked so...

Itch

I haven't had a shower or a bath for around 3 years because any water even rain makes me feel like a million Ants are biting me My doctor said...

Has anyone bled postmenopausal?

Could anyone help me with this? I'm 51 and just had bleeding after 2y of not having a period. It started on Oct 19 and it's been happening every 10...

Lupus

Just a question for anyone who has sle lupus and family members that have had been diagnosed with asbestos cancer and the correlation between these diseases I was reading about...

Chest Pain Anyone?

I sometimes have chest pain around my heart that feels like a stabbing pain, lasting only a few seconds, and happens a few times an hour and for several hours...

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...

Coping

What’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...

Things I found that help

Since I suffer with both Lupus & Sjogrens, I found that taking the supplement glutathione and Lactoferrin help. In addition, an infrared sauna....

Categories

Select a category to find topics that interest you.