caret icon Back to all discussions

How do people with autoimmune disorders survive from day to day if they are unable to work and are denied social security disability?

I have applied and been denied 3 times. The third time I had an attorney who handled it. I have lupus, Hashimoto's disease, and RA. I am unable to stand or sit for long periods and unable to walk more than a short distance because the pain in my feet and back is too much. I also have respiratory issues resulting from problems with my liver, kidneys, and thyroid. I don't drive and the nearest bus stop is a mile away and I live in Florida so whenever I exert myself to much in the heat I can't breathe and nearly pass out. I was able to get food stamps so that helps, but I have no money for anything else- not a single penny. Now that my latest application for disability has been denied, I'm just trying to figure out how I will survive. What do others do to get by in similar circumstances?

  1. I'm sorry that you have gone through so much to get financial help. Is there another lawyer you can talk to to make the appeal again? Maybe your doctor has some information to help you get another lawyer that really understands the system.

    The only thing I can really think of is social services. Since you said you already get food stamps maybe speak to a social worker there that may be able to help you with getting some help from them.

    If you don't mind me asking what is your roundabout age? That can also have an effect on disability. If you are over 65 they would just convert it to SocialSecurity.

    I have done side jobs to try and get funds when I was attempting to get SSDI. I always asked friends if they needed help that I could get paid for. I know that's not optimal but it worked until I did get disability. I was also married so I had my husbands income. I am sorry I don't have any other suggestions. I really hope you are able to find ways to supplement income. ~Racquel~ team member

    1. I'm 58

    2. That is unfortunate. I agree there is a gray area that is in the process. Are you able to contact a lawyer? ~Racquel~ Team Member

  2. I’m so sorry to hear that getting disability has been so tough. I got super lucky that I had a phenomenal lawyer. It still took years from when I applied to when I was approved. I agree totally with s suggestions on where to go from here. She’s very intelligent and has great advice. I hope you can find another lawyer as I think it may be best. Amber RN, BSN, Team Member

    1. ,
      Oh my goodness that is so frustrating!
      I'm saddened to hear how challenging it has been for you.
      In addition to the suggestions already provided, I wanted to share this link: https://www.usa.gov/state-social-services. It may provide some help/information in your area.
      Warmly, Doreen (Team Member)

      1. I applied and was denied. A few years later I tried again. Years later I tried again and after finally ending up in front of a judge, I won. I'm also in Florida. Florida is one of the hardest states to get SSD. I went two years with zero income, living frugally off of a retirement account until it was gone. The attorney cost thousands, and the money I received in the end was a tiny fraction of the funds I depleted. Talk to the Human Services department in your county to see if you have any options. If you have zero income it is possible that you could qualify for assistance. Of course in Florida, you need to have children to qualify. There are non-profit organizations that assist people with disabilities to enter OTJ or limited hour work opportunities. In some cases you can access provided transportation. If none of that works, I recommend that you consider leaving the state for a state with friendlier policies. It's hard, and I know, because I am trying to do the same thing. I wish you success.

        1. You have my sympathies. I get it - as do thousands of others in our shoes. I love the light rail in Colorado! That is the place to be and that's what I'm working on right now. Yes, it is certainly one of the most expensive places to live, and the rents are high but things are not getting any better here and they've gone only downhill in the last couple of decades. I'm fearful that soon there will be no place friendly for people like us, but for now....I need to find the best possible situation. I wish you well. When I am successful and leave the Sunshine State, I will check back in with this community and let you know how it works out. Wishing you good luck and and all the best.

        2. I have heard that Florida's process is just outrageous. ~Racquel~ Team Member

      Please read our rules before posting.