Ask The Advocate: How PsA Impacts Daily LifePsoriatic arthritis can change how you live your life every single day. This condition is the center of the wheel that outreaches to all different aspects of life: physical and... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Finding a Good RheumatologistPeople who have chronic health conditions like ankylosing spondylitis (AS) or other similar diseases might be advised by their regular doctor or primary care physician to see a specialist known... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
4 Ways I Advocate For Myself At The ER or Urgent CareAs someone living with lupus, there are times you have an urgent matter that needs immediate attention. When your doctor is not available to see you, the ER or urgent... By Maggie LoBue2 min readBookmark for laterReactions 0 reactions Comments0 comments
Steroid Cream for Scalp?Hi Ava, You mentioned steroid cream for scalp. Can you tell me more about that? Thanks JoAnn... By joann1 min readBookmark for laterReactions 0 reactions Comments2 comments
What Does Life With Lupus Look Like In 5 Years?Looking at Facebook on my phone, I see a post that reads, “What would you do if you had a glimpse for one hour of where your life would be... By Marci Kallick2 min readBookmark for laterReactions 0 reactions Comments0 comments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesAs the COVID-19 pandemic continues, telehealth is being used by more and more people. Telehealth is also sometimes called telemedicine or virtual care. Whether you have been using telehealth for... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Brain Fog: The Impact of RA on Mental FunctioningResults from the 2019 RA In America Survey showed that 61 percent of survey participants living with RA experienced brain fog within the last month of taking the survey. Along... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Living With Fibromyalgia And ASWhen you live with ankylosing spondylitis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and more. Many people who live with AS also... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
“But You Don’t Look Sick”The thing about living with a sometimes-invisible disease is that it sort of feels like it's you against the world. You're living with this secret, this shadow, this double-life —... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
4 Self-Advocating TipsWhen suffering from such a mysterious illness, you are often required to see multiple doctors that specialize in different things. I can definitely get a little messy at times. This... By Chandra Jo Crosby2 min readBookmark for laterReactions 0 reactions Comments0 comments
At-Home Devices That Can Monitor Your HealthAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
It Is Hard to Have Fun in the Sun With LupusThroughout my life, one of my all-time favorite sensations has been feeling the warmth on my skin from rays of sunshine. I love feeling warm from head to toe. Growing... By Ava Meena2 min readBookmark for laterReactions 0 reactions Comments5 comments
Don’t Stress Your Next FlareYou know what it is like. You’ve had a really good day, or perhaps week. Everything is going your direction and you feel you finally have a handle on your... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
The Strobe Light of Chronic Illness – How Others See Only Small SnapshotsI was watching a cop show the other day and one of those obligatory, “drug addled-club goers rave” scenes came on. You know, the one that shows what Hollywood thinks... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Dry, Cracked, and Very ParchedA few years ago, I presented with blurry vision and a weird sensation of people moving away from me while I looked at them. The best way I can describe... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
In America: What's That?The In America survey is now closed. Are you one of the millions of people dealing with lupus? We know how much lupus can impact your life – and we... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
From Being a Social Worker to Needing OneGentle greetings, I’m Lina T. These are a couple of layers of my health journey. I was already a widow in my late 20’s and I had the courage to... By magicalpatterns4 min readBookmark for laterReactions 0 reactions Comments7 comments
Living with Discoid LupusDiscoid lupus can affect any person's emotional aspect of life. You ask yourself if you are beautiful enough; will you love yourself so others can love you? Will others be... By Jokiva Bellard3 min readBookmark for laterReactions 0 reactions Comments1 comments