Amplifying Black Advocate Voices: How Bias Has Affected My Patient JourneyBeing diagnosed with an autoimmune condition like lupus can take years. Many people report their early symptoms were dismissed by doctors or they were misdiagnosed. This delays treatment, which lets...Reactions0reactionsComments1 comments
How It All Is Meant To Be: My Friendship With Stevie, Part 1I was diagnosed with systemic lupus erythematosus in 1990 at the age of 16 after 4 to 6 years with unbearable and sometimes untreatable headaches. For years, my parents consulted...Reactions0reactionsComments0 comments
My COVID-19 ExperienceI had the scare of my life and I felt I should definitely be more cautious. I went to Atlanta for Christmas and New Year's to visit my mutual family...Reactions0reactionsComments2 comments
Reflecting on My First Skin RashWhen I was first diagnosed with lupus, I was just a kid. Being diagnosed with any disease is not what anyone would want. What is even more hurtful is the...Reactions0reactionsComments0 comments
Lupus.net Celebrates 1 YearIt is hard to believe that just 1 year ago, we launched Lupus.net. Happy anniversary to our community members! Lupus.net was created to cultivate a community for people living with...Reactions0reactionsComments0 comments
Letter to Family and FriendsDear Family and Friends, It’s me, your lupus warrior, giving my perspective as to what I need in my battle to beat lupus. I know it is hard for you...Reactions0reactionsComments5 comments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...Reactions0reactionsComments0 comments
Traveling Anywhere These DaysTraveling these days has become so hard, especially due to COVID-19. I have traveled many ways and always made sure I protected myself. I flew in a plane, rode a...Reactions0reactionsComments0 comments
Why Is the Doctor-Patient Relationship Important?For those of you who were born before the millennium, medical treatment, living with a chronic illness, and navigating medical insurance was a nightmare. If you were lucky to have...Reactions0reactionsComments3 comments
Experience With Sjogren's SyndromeSjogren's syndrome and lupus can mix with each other. Sjogren's syndrome is another autoimmune disease and mimics lupus also. As many know, lupus can mimic other diseases. It can attack...Reactions0reactionsComments0 comments
What a Tough Year Has Taught Us About Battling Lupus2020 was a year like no other. With the COVID-19 pandemic, stress over staying safe while battling a chronic illness has been at an all-time high. It has brought on...Reactions0reactionsComments0 comments
Coping with Frequent UTIs, Part 1Although my UTIs (urinary tract infections) are much less frequent now compared to what they were 4 years ago, I still have to be so careful. I suppose I just...Reactions0reactionsComments2 comments
My Goals For The New YearNew year; same me, as I always say. I mean, there is always room for improvement, and I have a lot that I do want to improve about myself but...Reactions0reactionsComments0 comments
Take the Allergies In America Survey!The Allergies In America survey is now closed! More than 50 million Americans are living with allergies. Allergens can take shape in many forms with widespread and serious effects on...Reactions0reactionsComments0 comments
Self-Love Beyond Lupus: Healing in Between the CureIt can be difficult to extend love to yourself beyond lupus. Between the physical pain and emotional strain, it can become so stressful that you forget to care for yourself...Reactions0reactionsComments0 comments
Lupus And The Problems It CausesEveryone knows when you have a flare it can cause major problems with dealing with lupus. It can attack every part and any part of your body. As lupus flares...Reactions0reactionsComments18 comments
How My Sister Supports Me On My Journey With LupusLike many siblings, I did not always get along with my sister when we were growing up. We were born three years apart and we were different people. She was...Reactions0reactionsComments0 comments
My Concern About The COVID-19 VaccineI am seriously nervous about getting the COVID vaccine, especially with the side effects. Having lupus, we are not allowed to get live virus vaccines. According to The World Health...Reactions0reactionsComments1 comments
Finding Purpose Living Through a Lupus DiagnosisI was diagnosed with lupus at the age of 16. School has always been a priority in my house. Two years before my diagnosis, my parents paused my education because...Reactions0reactionsComments3 comments
I Have Lupus PlusI have lupus plus, meaning I have lupus plus way too many other health issues. When I was diagnosed with lupus, it was the third time I received a diagnosis...Reactions0reactionsComments5 comments