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Read conversations, start a discussion, and connect with others about Lupus.

Keep my spoons

I got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...

Taking notes to the doctor.

I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...

Swelling in my feet and legs

Does anyone have trouble with swelling in your feet and legs if so what do the Dr's do for you is this a flare up...

Cart T-Cell Therapy for Lupus/Autoimmune

After taking over a decade to diagnose, and now having lived with Lupus for a number of years, which in my case caused Interstitial Lung Disease, Lupus Nephritis, Fibro, and...

Uncontrolled movement

Has anyone had issues with uncontrolled body movements? I catch my toes constantly moving up and down and have hand spasms....

What are signs and symptoms of lupus

I was diagnosed 5 or 6 years ago with moderate lupus. I've been hurting for a long long time but didn't associated with that because I really don't know anything...

Raynaud's

Raynaud’s disease (also known as Raynaud's syndrome or Raynaud's phenomenon) is a condition in which the tips of the fingers or toes turn white, blue, red, or purple when exposed...

Should I be worried about unexplained bruises on the wrist, knuckle and elbow of one arm?

Hi all 👋 really happy to have found this community, as I’m a bit stumped and could do with another pov (or two!). I’ve been diagnosed with hypermobility and inflammatory...

ANA test

Is it possible to get a negative ANA test because of not being in an active flare? I always have low grade symptoms like a fever and fatigue but I...

Experience with Cats Claw?

Hi friends, I’m new here and new to lupus - I am very tired but with the little energy I have had, I have been on the research train nonstop...

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