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Read conversations, start a discussion, and connect with others about Lupus.

Raynaud's

Raynaud’s disease (also known as Raynaud's syndrome or Raynaud's phenomenon) is a condition in which the tips of the fingers or toes turn white, blue, red, or purple when exposed...

Should I be worried about unexplained bruises on the wrist, knuckle and elbow of one arm?

Hi all 👋 really happy to have found this community, as I’m a bit stumped and could do with another pov (or two!). I’ve been diagnosed with hypermobility and inflammatory...

Tattoos

Hello, I want to get another tattoo I've done a lot of research but just wanted to see what real people had found getting a tattoo with Lupus? Thanks...

ANA test

Is it possible to get a negative ANA test because of not being in an active flare? I always have low grade symptoms like a fever and fatigue but I...

It's Giveaway Time!

One lucky winner will receive a pair of Warmies microwavable slippers! Get more details about the giveaway here.

Experience with Cats Claw?

Hi friends, I’m new here and new to lupus - I am very tired but with the little energy I have had, I have been on the research train nonstop...

Similar experiences of early lupus or other diseases?

Hi all! I'll try to keep this brief. I'm just wondering if anyone else had a similar course and if so what your diagnosis was in the end! Abnormal testing...

Do you experience brain fog? Please share your experience with us!

Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue for up to 60 percent of people living...

Angry Much 😡

What do you do when you get so frustrated and angry with your body because it either doesn’t operate how it used to or won’t do what it needs to...

What helped my lupus

Update: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...

Traveling with Lupus

The holidays can be a time of fun, but can also be physically and mentally exhausting. Not all folks living with a chronic health condition are able to safely travel...

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