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Read conversations, start a discussion, and connect with others about Lupus.

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after recovering from a flare?...

Managing Lupus when Treatment Isn't Simple

What are your experiences managing lupus when treatment advice isn't clear or you don't have the necessary resources? What helps you get through the day?...

New to this

Sorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I appreciate it....

Neurologist

Hi everyone, I'm curious if a neurologist can refer an ANA blood test to test for lupus? Or can only a rheumatologist? Thanks...

It's Giveaway Time!

One lucky winner will receive a pair of Warmies microwavable slippers! Get more details about the giveaway here.

Keep my spoons

I got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...

Taking notes to the doctor.

I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...

Swelling in my feet and legs

Does anyone have trouble with swelling in your feet and legs if so what do the Dr's do for you is this a flare up...

Cart T-Cell Therapy for Lupus/Autoimmune

After taking over a decade to diagnose, and now having lived with Lupus for a number of years, which in my case caused Interstitial Lung Disease, Lupus Nephritis, Fibro, and...

Uncontrolled movement

Has anyone had issues with uncontrolled body movements? I catch my toes constantly moving up and down and have hand spasms....

What are signs and symptoms of lupus

I was diagnosed 5 or 6 years ago with moderate lupus. I've been hurting for a long long time but didn't associated with that because I really don't know anything...

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