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Active 5 days ago

Rituximab Infusions

I have had SLE since I was 30. I am now 66. My flares are becoming more frequent and so I am...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Flares, Dizziness, Sun

I have been diagnosed with 5 autoimmune disorders, with test and 2 medical specialist, for 14 years. I have SLE Lupus involving...

Do you wear a medical alert bracelet?

Do you wear a medical alert bracelet for lupus or any other comorbid conditions? Has it ever come in handy or helped...

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors...

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Multiple Pills and how to take them?

I have been diagnosed with SLE since 1997 but had symptoms before the diagnosis. I now have a list of other problems...

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

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