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Read conversations, start a discussion, and connect with others about Lupus.

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Lip Rash

I have only ever had the signature butterfly rash on my face once. That was the start of the diagnosis for me. But I have had an unusual rash on...

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Could this be a malar rash?

I've had a rash on my face that comes and goes for a few years now. I also have a lot of joint pain and swelling in my wrist and...

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Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...

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Pain Is A Ten

I have been dealing, again, with a flare for 2 weeks. Waiting on my Rheumatologist to call me back. My pain is 10 on most days. I know this because...

Active yesterday

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Skin sensitivity

Hi Everyone! Sooo i have SLE, as well as a multitude of other autoimmune diseases (I’m basically collecting them like Pokémon now). But, i recently have had intense and painful...

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Newly diagnosed looking for answers

Hello everyone. A couple of weeks ago I was diagnosed with lupus and vasculitis. I was just curious if anyone had their lupus come on after a very bad viral...

Hand pain

Hi everyone, Does anyone suffer from constant hand pain? My hands constantly hurt! My knuckles are getting big and I have a hard time holding onto things. I've had xrays...

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