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Read conversations, start a discussion, and connect with others about Lupus.

Active today

Do you wear a medical alert bracelet?

Do you wear a medical alert bracelet for lupus or any other comorbid conditions? Has it ever come in handy or helped...

Active today

Rituximab Infusions

I have had SLE since I was 30. I am now 66. My flares are becoming more frequent and so I am...

Active today

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

Active 2 days ago

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...

Active 3 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 3 days ago

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors...

Active 5 days ago

I finally am diagnosed but it took 35 years

I was pretty sure for 20 years I had an autoimmune disease, but my ANA was negative and my doctor refused to...

Active 5 days ago

Flares, Dizziness, Sun

I have been diagnosed with 5 autoimmune disorders, with test and 2 medical specialist, for 14 years. I have SLE Lupus involving...

Active 6 days ago

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

Active 6 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

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