Gifts for Someone Newly Diagnosed With LupusWe celebrate birthdays, weddings, and baby showers with gifts. But why is it less common to give a gift to someone when they're going through a divorce, have lost a...reactionscomments
How to Improve Communication with Your DoctorIt's so important to advocate for yourself And ask questions about your condition and treatment options. There are ways you can speak with your doctor that gets them to answer...reactions2comments
From Care Receiver to CaregiverA few weeks ago, I received a scary phone call from someone I cared about. An elderly relative who lived near me was very sick and needed to go to...reactionscomments
A Day in the Life With LupusLupus can leave you feeling drained, physically and emotionally. People who do not live with lupus do not always see the complications and struggles those who have lupus face each...reactions9comments
How I Became a Patient AdvocateDuring the first 4 years I was sick, I didn't tell anyone about my illness out of fear of rejection. Now, I write and speak about my illness openly. Here...reactions1comment
What It’s Like to Have a Humble DoctorHumility is not a characteristic that I thought to look for in a doctor. It's not something I've found often, either. I never really thought about it or expected it...reactionscomments
How I Cover My Dark Circles with MakeupLupus is an invisible illness. I don't walk with a limp, need a wheelchair, or show any of the typical physical signs most people associate with disability. My pain almost...reactions1comment
Why I Tried Ketamine for My DepressionTreating depression can be a complicated journey. Not every medication works for every person, and the process of finding the right treatment can be grueling. People with treatment-resistant depression, or...reactions3comments
The Struggle of Getting Diagnosed With LupusIf you are struggling to get diagnosed, you are not alone. Most people search for answers for 7 years before they are diagnosed with lupus. The pre-diagnosis stage is one...reactions3comments
How Adopting A Dog Helped Me Cope With LupusAt one of my lowest points with lupus, I impulsively adopted a shelter dog. I had been feeling isolated from friends and family due to fatigue that seemed endless. Adopting...reactions7comments
3 Things I Learned Not to Do On My Lupus JourneyIt is difficult to deal with everything that lupus throws at you. I have always looked at what I CAN do beyond lupus. After walking on this lupus journey, I...reactionscomments
Decorating for Christmas On a Budget With LupusAffording Christmas decorations when you have lupus isn't always easy. Fortunately, you can find many different decor options at Dollar Tree and discount stores like Ollie's. Check out this video...reactions3comments
3 Things Not to Say to a Lupus WarriorAlthough well-intentioned, sometimes words can be hurtful to lupus warriors. It's important to be mindful and conscious of what is being said to lupus warriors as they fight for their...reactions2comments
4 Tips to Help You Sleep BetterDo you have trouble sleeping? Sometimes lupus can affect your sleep. With the pain, medication, and extreme fatigue, sleep can evade us. There are a few ways to help you...reactions24comments
3 Ways To Feel a Little BetterSometimes, the little things can make you feel a little better on those rough lupus days. I’ve found out if I hydrate, move my body, and speak positively about myself...reactionscomments
5 Ways to Become a Better Health AdvocateIt's scary to advocate for yourself. Navigating the healthcare system can be scary and difficult, especially dealing with a chronic illness like lupus. Everyone has different experiences and faces many...reactions2comments
Examples of How I Use My Daily SpoonsHave you heard of the spoon theory? It started when Christine Miserandino was trying to explain to a friend what it’s like to live with lupus on a daily basis...reactions4comments
Tips For Lupus FogHave you forgotten your glasses that are on your face? Maybe you've been talking on the phone and looking for it at the same time? Perhaps it's been a little...reactions24comments
My Video Demonstration of Self-Injecting a BiologicHave you ever wondered what it’s like to do a self-injection? Whether you are trying a biologic for the first time or switching from an infusion to a self-injection, it...reactions4comments
My Medication Travel GuideLike many of you, I am on a constant search to organize my medications, auxiliary medications, braces, and many other items that I need to manage my lupus. I travel a...reactions1comment
