The Struggle of Getting Diagnosed With Lupus

Join the conversation

1. 

   CommunityMemberLR

   <p><inline-mention username="Meghan Bea" user-id="2483318"/> thank you so much for this video. I looked back and my first negative ANA was 9 years ago. Now I’ve finally tested positive with IFA (my PCP was ordering the 5 antibody panel multiplex all those years)……the Rheumatologist I went to was completely dismissive because I’m negative to the antibodies she tested for. There are several linked to my ANA pattern that she didn’t order. She actually put in my chart that I showed NO signs of synovitis or inflammatory arthritis during my exam. She literally never even looked at me. Her APRN took my H&amp;P and she could see that I could barely walk. CRP five times the reference high, joint pain in shoulders, hips, knees and ankles…..nasal ulcer, Raynaud’s 30+ times in 3 months and I’d never experienced that before. I walked out with a diagnosis of Fibromyalgia and a prescription for Cymbalta. Back to square one. Now to wait months to get a referral for a second opinion and the flare is subsiding so the next one probably won’t believe me. All that to say, this video gave me encouragement to keep trying, even when no one else gets it. Thank you. </p>

   reactions

   reply