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jan1956

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jan1956's Status Updates

  1. "Hi I am new to this forum
    I have lupus and for the last 5 weeks I have had a very sore face and neck and my face became extremely tight and itchy.
    I was put on 2 courses of steroid tablets but it has left my face extremely wrinkled I am still having a strange feeling in my face has anyone else suffered with this
    Under my skin it feels like there is something crawling I know it may sound odd but it has really changed my appearance"

    1. GabbyFormica's avatar image

      GabbyFormica

      Hi !
      Firstly, I am so sorry you are experiencing such discomfort lately and that the treatment isn't working as well as they hoped. Also, You posted this as a personal status update as opposed to in a public forum. If you would like, I can start a forum with this same information in order to get more people to see it and hopefully provide some feedback for you! I want to make sure the community can easily access your story so we can get you the answers you need!
      Sending warm thoughts,
      Gabby (team member)

    2. jan1956's avatar image

      jan1956

    3. jan1956's avatar image

      jan1956

      Hi Gabby I would appreciate it if you could do that for me
      Kind regards
      Jan

    4. GabbyFormica's avatar image

      GabbyFormica

      I have created a forum with your words! I also tagged you in it so you can see any future responses. Sometimes it takes a little time for the community to start responding to forums but I will plan to feature this one in our newsletter next week to try to get more attention to it! Here is the link to the forum https://lupus.net/forums/face-steroids. Wishing you well,
      Gabby (team member)

    5. Cody Leach's avatar image

      Cody Leach

      Hi - It's been a few months since we last heard from you. How have you been doing? - Cody (Team Member)