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What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as...

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

Cannabis

Has anyone tried using medical cannibis for Lupus? I hear many great things about it but I would like to talk to...

Recently diagnosed with Lupus

Hi - Recently diagnosed with Lupus that attached the sac of my heart so my main discomfort/pain is in the chest area...

Abdo symptoms

Does anyone suffer with abdominal symptoms with their lupus I have been exhausted for 4 weeks. Having a CT scan tomorrow and...

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone...

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

Digestive problems

Anyone have problems with the digestive track? I have been on antibiotics for about 10 months now and I feel horrible and...

Family Support

How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus...

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a...

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