Livedo reticularis
I have had a large patch of livido reticularis on my lower back for over a year. The area aches like crazy. I've shown it to 5 different doctors and they have no idea what to do. Has anyone else dealt with this? Any tips please?
, That sounds very frustrating and painful. I'm sorry you are dealing with that. I'm not sure if this is similar to what you are experiencing, but one of our patient leaders was dealing with leaking blood vessels that led to discoloration under the skin: https://lupus.net/living/purpura-blood-vessels. It certainly looks different than livedo reticularis, but if doctors are still unsure, it might be worth mentioning in your next appointment. The problem with lupus is that it seems to have a way of impacting nearly every part of the body and far too many doctors aren't as educated as they should be about the realities of life with lupus! I hope you are able to get some real answers and clarity sooner rather than later!
Gabby (team member)
