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Read conversations, start a discussion, and connect with others about Lupus.

FeaturedActive 4 days ago

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

Rest is the only answer!

When I get a flare, which are much worse in the summer months! The only thing that really helps is rest! Family really don’t understand and still expect you to...

Active today

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...

Active today

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active today

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Active 4 days ago

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Active 4 days ago

Anifolumab for SLE

Anifrolumab I was diagnosed with lupus in 2023 but my first flare (which was ignored at the time) was in 2000. I recently found a new rheumatologist and almost didn’t...

Active 4 days ago

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I don't have friends or family nearby and people...

Active 4 days ago

Where do you go for Support

I have no family and ir anyone to actually confide in. I am pretty much alone. I enjoy walking to health to keep myself functioning My hands and fingers sometimes...

Active 4 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

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