FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...reactions241repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a...reactions6repliesCaregiving
Active todayNobody Gets ItSometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my...reactions7repliesBrain Fog
Active todayConstant fatigue Daily, I am extremely tired. Does anyone have tips to help?...reactions184repliesFatigue
Active todayWhat tips do you have for managing medications?Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take...reactions39repliesTreatment
Active todayEyebrowsI have Permanent hair loss on my eyebrows, looks like alopecia, I had permanent make up done before I was diagnosed with...reactions5replies
Active yesterdayAfter Flare Self-CareIt's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...reactions208repliesCopingTips & Advice
Active yesterdayHas anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I...reactions48repliesSide EffectsSleepTreatment
Active yesterdayShame and GuiltDo you have shame or guilt when needing to rest?...reactions216repliesCoping
Active yesterdayRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...reactions139repliesCopingJoint PainSymptoms
Active 4 days agoDry mouth with watering Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...reactions104repliesSymptoms
Active 4 days agoFeeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...reactions256replies