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Read conversations, start a discussion, and connect with others about Lupus.

Featured

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

Rarely seem totally well

I have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days a week in bed) and Imuran (fatigue, mouth...

Active today

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...

Active today

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

Active today

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Active today

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...

Active yesterday

Walk to End Lupus Now

Hello everyone if you don’t already know this month and next month there will be Lupus Walks all around the world and Iam a co-captain for one here in New...

Active 3 days ago

Cutaneous lupus

I have both systemic and cutaneous lupus. I’m wondering if anyone else out there with cutaneous lupus experiences skin shedding. I periodically, almost like a lizard, go through periods when...

Active 4 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 4 days ago

Stay positive and keep stress to a minimum

I got Lupus at 68 now 3yrs. I was fortunate to have Drs who diagnose quickly. Im taking a infusion every 28 days Saphnelo. It works great but you still...

Active 5 days ago

State disability

How do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be seeing a judge in June I also been...

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