Active todayAltered Senses From LupusHas anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...reactions112replies
Active todayChest Tightness from Sun ExposureAnyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors...reactions55repliesAnxietyFatigueSun Sensitivity
Active yesterdayI finally am diagnosed but it took 35 yearsI was pretty sure for 20 years I had an autoimmune disease, but my ANA was negative and my doctor refused to...reactions3repliesSymptoms
Active yesterdayRituximab InfusionsI have had SLE since I was 30. I am now 66. My flares are becoming more frequent and so I am...reactions1replySide EffectsTreatmentTips & Advice
Active 2 days agoAm I the only one that feels guilty for not being able to work?Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...reactions154repliesWork & Employment
Active 2 days agoFlares, Dizziness, SunI have been diagnosed with 5 autoimmune disorders, with test and 2 medical specialist, for 14 years. I have SLE Lupus involving...reactions5repliesSun SensitivitySymptomsTips & Advice
Active 3 days agoMouth sores/ulcersOne of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...reactions129repliesSoresSymptomsTreatment
Active 3 days agoFeeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...reactions306replies
Active 3 days agoMultiple Pills and how to take them?I have been diagnosed with SLE since 1997 but had symptoms before the diagnosis. I now have a list of other problems...reactions11repliesTreatment
Active 4 days agoProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...reactions287repliesTreatment