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Read conversations, start a discussion, and connect with others about Lupus.

Lip Rash

I have only ever had the signature butterfly rash on my face once. That was the start of the diagnosis for me. But I have had an unusual rash on...

Face Symptoms and Steroid Side-effects

This post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...

Benlysta

Hi everyone, my journey began in 2009. I wasn’t formally diagnosed with Lupus SLE until 2014. I was in denial for a long time. I took hydroxychloroquine for several years...

Histamine intolerance

My newly acquired "allergy" problem is driving me nuts. We've used Singulair, prednisone, anti-inflammatories, antibiotics and other antihistamines. We've decided it is histamine intolerance. Now what? And, my heat intolerance...

Help me understand a little more about lupas

I've been having high fevers 1-2 a week, pouring sweat and freezing at the same time for hours. I've haven't been able to see a specialist yet and I literally...

Fever every single night!

Does anyone else get fevers nearly every single evening that progressively get worse making you feel like ya have the flu? This happens to me at least 2 weeks out...

Curious…Food changes?

Hi, I have been reading a lot of the comments about all you amazing people! I just want each and Everyone to know, Each of You are seen, I See...

I got a question ❓

Ok I've been so sick in and out hospital. And finally they said I have lupus. I've never even heard of that. Well I lost almost all my hair. My...

Skin sensitivity

Hi Everyone! Sooo i have SLE, as well as a multitude of other autoimmune diseases (I’m basically collecting them like Pokémon now). But, i recently have had intense and painful...

Lupus and Cutaneous Mastocytosis

Hi I have had SLE since I was 17yrs old. I am now 67 and a year ago started having severe hives. After having allergy skin tests coming back negative...

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