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Read conversations, start a discussion, and connect with others about Lupus.

Social Activities

How do you all handle your social lives? Do you still talk with friends or go out when you can and it is safe? How do you keep your social...

Our survey data is in!

For those of you who participated in our 2nd Annual Lupus in America Survey, we cannot thank you enough. The results will help the wider field with research and finding...

Possible Lupus Diagnosis

Hi All, I just received my ANA results with a titer of 1:1280 (homogeneous). I have low Vitamin D levels and have been developing hives and rash on my face...

Do you experience symptoms of lupus but do not have a diagnosis?

Share your experiences of symptoms here....

What Do I Do?

I just signed up, like 3 minutes ago. Can someone give me some guidance as for what to do? How this site works? I’m trying to find a supportive site...

still waiting

Hi all I'm new here. I haven't been diagnosed with lupus however thru my own research I see my symptoms and some test results certainly point to it. My doctors...

My worst flare up yet

I recently had my worst flare-up yet. Does anyone know what I should do that can help me? I was suffering from severe headaches, body aches and pain down my...

living with multiple auto immune disorders

I've recently been diagnosed with Lupus and started on Benlysta. Before I started with this rheumatologist, the previous one diagnosed me with psoriatic arthritis and I was on Remicade for...

Does anyone have any experience with lupus induced by anti-tumor necrosis factor (TNF) agents?

In 2018, I was diagnosed with drug-induced lupus after three infusions with Infliximab for Crohn's disease. I was told that the symptoms would resolve fairly quickly after stopping the drug...

Need advice

I was recently diagnosed with lupus and I am currently am on plaquenil twice a day. I have been on this medication now for a total of 1 1/2 months...

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