What Do I Do?
I just signed up, like 3 minutes ago. Can someone give me some guidance as for what to do? How this site works? I’m trying to find a supportive site, but not one that is negative all the time. I’ve been on ones where everything is the end of the world and ones where everything is roses. I’m looking for a little of both and things in between. I hope I haven’t scared everyone off! Thank you, Kathy
Hi,
welcome to Lupus.net! My name is Lawrence one of the community managers here on the website. We are glad that you were able to submit your question to our Q&A section of the site. You are totally in the right place, and I wanted to share with you some of the areas of the website for you to learn more and connect with others. You can first keep up to date with all things and the rules of the website within our community rules section, other members by visiting our community section: https://lupus.net/community/. You can also click on the Lupus icon on the top left-hand side of your screen to visit our homepage to read and comment on all of our new articles that are published each weekday! Looking forward to hearing from you soon. -Lawrence (Lupus.net Team) I'm new here as well I followed it through ig love the articles im new to having autoimmune disease just trying to figure it out mines came on rather quickly 😒
Kathy,
I am a moderator here at Lupus.net. I do understand your frustration with the information that is in the public forum. I try and incorporate a positive aspect in all of my responses, as well as articles, so that each viewer leaves the site with something to carry with them. Please remember that lupus has its ups and downs. Also remember that each experience is different. Living with lupus is an evolving experience. The more you educate yourself, the more you are able to help play a role in controlling your condition. Start with learning as much as you can about management. Check out the article on self carehttps://lupus.net/living-coping/ You may also want to check out other resources for patient management resources that provided by the Lupus Foundation and the Lupus Initiative. These resources may help you better understand your condition and step into each event with a better understanding. Once I began to understand what was going on, I began to learn what triggered each flare, symptom, etc.
I wish you the best and hope that 2021 will bring you better health.
Warmest regards,
Chris Moderator Lupus.net Team
