FeaturedActive 3 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments221 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active todayProtecting Your PeaceThe holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...Reactions0reactionsComments356 repliesCopingMental HealthTips & Advice
Active 3 days agoWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...Reactions0reactionsComments147 repliesAwareness
Active 3 days agoProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...Reactions0reactionsComments226 repliesTreatment
Active 3 days agoBrain fog and low energyHi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...Reactions0reactionsComments33 repliesFatigueJoint PainSymptoms
Active 4 days agoDiagnosed TodayHello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...Reactions0reactionsComments49 repliesSymptomsDiagnosis
Active 4 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions0reactionsComments97 repliesCopingJoint PainSymptoms
Active 4 days agoLupus recurring after numerous years of remissionGood Afternoon, All. I'm hoping for some validation. In 1973 I was given Azo Gantrisin for a UTI. I quite quickly developed a butterfly rash, joint pain and extremely fatigued...Reactions0reactionsComments1 repliesTips & Advice
Active 4 days agoPregnancy and lupus nephritisHey everyone Just wondering if anyone has gone through pregnant while having lupus nephritis? And what was your journey like Thanks in advance. X...Reactions0reactionsComments1 replies
Active 5 days agoHow are your Flares?I recently had one of the worst flares I have ever had. However, I kept questioning if I just had a stomach bug or if it was a flare. As...Reactions0reactionsComments5 repliesSymptoms