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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

Can't get out of this flare

Does anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...

Active today

Shortness of breath and fatigue

My bloodwork is all fine and so are my lungs but I still get out of breath for stupid things and also wit that comes fatigue. Does anyone else have...

Active today

Hand pain

Hi everyone, Does anyone suffer from constant hand pain? My hands constantly hurt! My knuckles are getting big and I have a hard time holding onto things. I've had xrays...

Active today

Gallbladder Surgery

Hi everyone, I'm having my gallbladder removed in a few weeks and I wanted to know if anyone has had a bad flare up afterwards. Any input would be appreciated....

Active today

Medicare

After turning 65 I found out that people who are on Medicare cannot get benefits from Benlysta Co-pay assistance. Does anyone else have this problem and if so please tell...

Active today

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...

Active yesterday

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Active yesterday

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Active 2 days ago

Brain fog and fatigue

Hi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...

Active 2 days ago

Rheumatoid arthritis and Lupus

Hey! I've been diagnosed with Rheumatoid arthritis and Sjogrens for 15 years. I'm in a pretty bad flare right now. My pain has always beem tendon pain. Achilles tendonitis, carpal...

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