When a Hug HurtsFirst I also have statue disease, when I was a child back in the day. My rash was treated (by Granny) with corn starch. You didn't see a doctor unless... By Stacey1 min readBookmark for laterReactions 0 reactions Comments1 comments
I'm Glad I Have Lupus!I remember the first time I ever heard/read the word Lupus. Me and my ex-wife had just endured our 4th miscarriage and we were looking for answers. We found a... By rrobison253 min readBookmark for laterReactions 0 reactions Comments1 comments
What's Happening To My Body Is Real1 year ago something changed my life forever. I woke up having severe pain in my back. I have a spinal fusion due to scoliosis, so I thought maybe I... By For Real3 min readBookmark for laterReactions 0 reactions Comments4 comments
A Family History: First to be DiagnosedI was diagnosed in 1979 after about 6 months of unexplained symptoms and am grateful to have had a family doctor who was an incredible diagnostician. Some of my friends... By TheaD19441 min readBookmark for laterReactions 0 reactions Comments2 comments
Freedom and Feeding TubesMost might have read my story, not gonna rewrite that... But after a long 6 months, I am finally released from both surgeon (feeding tube doctor) and cancer doctor, scan... By robine161 min readBookmark for laterReactions 0 reactions Comments1 comments
Lupus Doesn't Define MeI started having symptoms of SLE in 2016. I was just 16 at the time. In the beginning, I had mild joint pain and a horrendous case of scleritis, which... By al1999owl1 min readBookmark for laterReactions 0 reactions Comments7 comments
Tired of the Daily StrugglesIt began with fatigue and pain right after my son was born, and my doctor told me it was postpartum depression and started medicine for it. Since I was depressed... By BrandiD494 min readBookmark for laterReactions 0 reactions Comments2 comments
Lupus Won't Defeat MeI was diagnosed with SLE Lupus in 1997, at a young age. It impacted my life very hard but I fought through it consistently. I even held down a job... By yakkiluv1 min readBookmark for laterReactions 0 reactions Comments4 comments
Shopping Day Cut ShortOne time that still stands out to me is when it had only been a few months when I was told I had Lupus. I was shopping with a dear... By Trisha U1 min readBookmark for laterReactions 0 reactions Comments2 comments
Let's Play a GameLet me start out by saying I was a late bloomer. I got my first period just one week before my 15th birthday. Now, you're probably wondering what that has... By 3 min readBookmark for laterReactions 0 reactions Comments1 comments
"Will It Kill Me?"Well, I have had Lupus for 35 years. My daughter was 10 when I was diagnosed I went to my primary care doctor because I was so tired and in... By Olderlady631 min readBookmark for laterReactions 0 reactions Comments2 comments
It Has to Be GeneticI am waiting to see a rheumatologist to get the official diagnosis for Lupus and Sjögren Syndrome and have already been diagnosed with fibromyalgia. I am 46 years old and... By KFord741 min readBookmark for laterReactions 0 reactions Comments1 comments
New Here and Seeking AdviceLight bulb went off! A couple weeks ago I finally gave in and started researching what issues I have then everything made sense. Looking back I have had symptoms of... By Nikkidoodle721 min readBookmark for laterReactions 0 reactions Comments1 comments
In Nursing School with SLEI was diagnosed when I was 20, and I am now only still 21, so this is all very new to me and I’m finding it hard to navigate through... By hannah19991 min readBookmark for laterReactions 0 reactions Comments2 comments
Trouble Breathing with LupusI been struggling with lupus since 1986. It has been tough with the pain, swelling, and information going into hospital with my breathing, and coming home with an oxygen machine... By jonniewilliams1 min readBookmark for laterReactions 0 reactions Comments2 comments
Stronger and WiserI've learned to deal with so much discomfort in so many physical ways, that now my mantra is "it will get better", even if I just tell myself that to... By Marycuthbertson1 min readBookmark for laterReactions 0 reactions Comments1 comments
Tired and MisunderstoodI'm always in so much pain and I hate when my family asks "what hurts?" I don't even know where to start, so I usually just say everything. If I... By katelyngharris1 min readBookmark for laterReactions 0 reactions Comments1 comments
Finally Getting Answers!My journey started back in high school. I got an incredibly mild case of mono. I didn’t even miss a day of school for it! But then I never got... By Mmedrano1 min readBookmark for laterReactions 0 reactions Comments1 comments
How Lupus Has Affected Me and My DaughterMy daughter was diagnosed at age 15! She is now 30 years old! She would just lay on the floor and cry! As a mother, it would crush me that... By AnnetteWhatley1 min readBookmark for laterReactions 0 reactions Comments1 comments
Everything Makes Sense Now...I always felt like something was off. From always being more tired than others, or years of kidney problems that no one could figure out, to even my terrible pregnancies... By JoJo392 min readBookmark for laterReactions 0 reactions Comments3 comments