Stories

After a 22+ year military career, retiring in 2003, I started having issues just a couple of years later. Pain throughout my body, feeling tired, and just unable to do...

After reading this story on hysterectomy and menopause...I realized now how lupus affected my uterus and I nearly lost my son back in 1984. I was told not to get...

After suffering through extreme fatigue for many years, being told I was lazy, believing I was lazy, being diagnosed with pleurisy, migrating joint pain, 100 other issues and lastly, being...

My health issues began around 1990. Migraines sent me to a doctor first, then I would return to him as other things would start giving me troubles. After doing this...

Hi, I'm new here. Nice to be in a group that can relate to all our symptoms! It started 1 year ago with dry mouth and shortness of breath. I...

I can't say for sure when my lupus started. Personally, I think it was several years ago, but according to the doctors and my bloodwork, it was brought on by...

I was off Benlysta infusions for a couple of months for medical reasons. My lupus went crazy! I am back on the infusions and with blood work being taken my...

I am 65 years old. I have had minor issues throughout my life, but always chalked them up to other things. In 2018 I developed a pulmonary embolism out of...

First I also have statue disease, when I was a child back in the day. My rash was treated (by Granny) with corn starch. You didn't see a doctor unless...

I remember the first time I ever heard/read the word Lupus. Me and my ex-wife had just endured our 4th miscarriage and we were looking for answers. We found a...

1 year ago something changed my life forever. I woke up having severe pain in my back. I have a spinal fusion due to scoliosis, so I thought maybe I...

I was diagnosed in 1979 after about 6 months of unexplained symptoms and am grateful to have had a family doctor who was an incredible diagnostician. Some of my friends...

Most might have read my story, not gonna rewrite that... But after a long 6 months, I am finally released from both surgeon (feeding tube doctor) and cancer doctor, scan...

I started having symptoms of SLE in 2016. I was just 16 at the time. In the beginning, I had mild joint pain and a horrendous case of scleritis, which...

It began with fatigue and pain right after my son was born, and my doctor told me it was postpartum depression and started medicine for it. Since I was depressed...

I was diagnosed with SLE Lupus in 1997, at a young age. It impacted my life very hard but I fought through it consistently. I even held down a job...

One time that still stands out to me is when it had only been a few months when I was told I had Lupus. I was shopping with a dear...

Let me start out by saying I was a late bloomer. I got my first period just one week before my 15th birthday. Now, you're probably wondering what that has...

Well, I have had Lupus for 35 years. My daughter was 10 when I was diagnosed I went to my primary care doctor because I was so tired and in...

I am waiting to see a rheumatologist to get the official diagnosis for Lupus and Sjögren Syndrome and have already been diagnosed with fibromyalgia. I am 46 years old and...