Return of the Lupus

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1. 

   Ava Meena Moderator

   <p><inline-mention username="AlysonP" user-id="4235650"/> I&#39;m glad you got that break! Sometimes there is no explanation, unfortunately. But you may find an answer by tracking your symptoms. There&#39;s a book, Despite Lupus by Sara Gorman, where she talks about how she meticulously tracked nearly every aspect of her life and was able to manage her lupus much better as a result. It could be worth trying if you&#39;re aiming for remission. I know I would love to have some years without my meds! Thanks for sharing with us. -Ava, <a href='http://lupus.net' target='_blank' rel='noopener noreferrer ugc'>lupus.net</a> team</p>

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2. 

   AlysonP

   <p>Thank you Ava. I will looking the book you referenced! </p>

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3. 

   Chan

   <p>I am happy you shared your story and the part about fatigue resonates with me because it’s one of my major symptoms. Most days I have to tell myself that I am not lazy, my body is just not well and I need to rest.</p>

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   1. 

      GabbyFormica Admin

      <p>Hi <inline-mention username="Chan" user-id="4249973"/>, <br> Thank you for your support. Fatigue can feel so debilitating at times. It has nothing to do with &quot;laziness!&quot; Continue to be gentle with yourself and listen to your body&#39;s need for rest. You are not alone.<br/>-Gabby (team member) </p>

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4. 

   Cazmarglom

   <p>I don&#39;t have a diagnosis still but ime experiencing all of the symptoms mentioned..fatigue inflammation in my joints leading me to be hardly able to walk . Rash and liaison&#39;s on my feet ..my bottom has a really bad rash which is spreading quite quickly now ...as for grieving the person I was I really relate to it ..IAM now 61 but been like this for a number of years it&#39;s only now anyone is taking anynotice but still won&#39;t say it&#39;s lupus....I feel twice my age I used to be outgoing and loved a good party and dance now I can barely get myself dressed up for a night out it&#39;s so much effort with the fatigue and pain.i just want a diagnosis so I can getynhead around it and not feel like a hyprocondryact.x thinking of you all your <a href='http://warriors.xxx' target='_blank' rel='noopener noreferrer ugc'>warriors.xxx</a></p>

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   1. 

      GabbyFormica Admin

      <p><inline-mention username="Cazmarglom" user-id="6620835"/>, <br> I&#39;m so sorry you are dealing with these symptoms without answers or a treatment plan. Getting a lupus diagnosis can take years sometimes. This article explains a bit about the necessary tests to get a diagnosis: <a href='https://lupus.net/tests' target='_blank' rel='noopener noreferrer ugc'>https://lupus.net/tests</a>. Have you talked to your doctor about getting an ANA blood test, or being referred to a Rheumatologist to test for lupus? It might be worth looking into. You are not a hypochondriac. What is happening to your body is real! We hear you 💜<br> Gabby (team member)</p>

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5. 

   Cazmarglom

   <p>Thank you for your support 😘😘</p>

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