Years of Living Silently with Lupus Symptoms
Last updated: April 2022
I am 65 years old. I have had minor issues throughout my life, but always chalked them up to other things.
My first symptoms
In 2018 I developed a pulmonary embolism out of nowhere. Then I developed this rash after a beach vacation. Then another embolism. Then, in 2020, nephrotic syndrome, and the rash was diagnosed as cutaneous lupus. Finally diagnosed not only with SLE, but also lupus nephritis!
I had lupus for years
My nephrologist said to have developed stages IV and V of nephritis that I had, I would have had to have had lupus for years! I thank my docs for saving my life. Just keep fighting, you never know!❤️
Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?
Have there been things you have learned along your lupus journey that you wish had been explained to you by a healthcare provider earlier?