5 Huge Life Lessons I’ve Learned as a Lupus WarriorWhen I was first diagnosed with lupus in 2009, I was 27, newly married, and wanted to take on everything and be...reactions1comment
As Someone with Lupus, I Hate "You Can Do Hard Things"Very Unpopular Opinion: It’s time to stop telling people with chronic illness “You can do hard things.” It is not only carelessly...reactions1comment
Infusion Tips When Dealing with Lupus and Other IllnessesThere are several medications that people with lupus take as treatments. The most common are pills which are taken orally and then...reactionscomments
What To Expect When Taking CorticosteroidsI stare up at the IV bag of clear liquid snaking into my arm: "1000mg methylprednisolone," the nurse at my rheumatologist explains...reactionscomments
Fun Things to Do When Lupus Has You Sick and BoredMost lupus patients talk about the fatigue, joint pain, and social isolation that comes with a chronic illness. But a topic you...reactions2comments
How I Changed my Schedule to Accommodate Lupus FatigueWith a lupus diagnosis comes life changes. Sometimes these changes come in the form of pills that we have to take for...reactions5comments
4 Creative Outlets for People Living With LupusAccording to Brene Brown (author, social scientist, and researcher), "Unused creativity is not benign. It metastasizes. It turns into grief, rage, judgment...reactions2comments
3 Things I've Cut Out of My Life Because of LupusWhen I first became sick with lupus, I had no idea how much my life was about to change. I had to...reactions10comments
3 Strategies to Get a Good Night's SleepLupus patients are often fatigued and need more rest than the general population – which is why it’s so frustrating that many...reactions5comments
Write a Personalized Letter to CongressFor our community members in the United States, one meaningful way to start the conversation surrounding lupus awareness is to write a...reactionscomments
A Day in the Life With LupusLupus can leave you feeling drained, physically and emotionally. People who do not live with lupus do not always see the complications...reactions9comments
About 6 in 10 Lupus Patients Constantly Have to Explain the ConditionIt can be frustrating to explain lupus over and over again to people who simply do not understand. This can lead to...reactionscomments
Asthma & COPD with Lupus: Understanding the Link and RisksRecent research has shown that asthma and COPD are more common in people with lupus. In a new study, researchers looked at...reactions2comments
When Is It Time To Change Rheumatologists?At the end of 2017, I realized that I needed to change my rheumatologist. The time leading up to that decision leave...reactionscomments
Community Views: Tips for Better SleepLiving with lupus can bring many challenges, and one of the most common and exhausting is the struggle for restful sleep. This...reactions1comment
Why Is the Doctor-Patient Relationship Important?For those of you who were born before the millennium, medical treatment, living with a chronic illness, and navigating medical insurance was...reactions3comments
Building a Good Healthcare Team With LupusKnow thyself. In 2004, I secured a law clerk position with a judge in Fulton County, Georgia. I certainly felt blessed because...reactionscomments
What Are Tips For Building a Good Lupus Doctor Relationship?A good doctor treats the whole patient. I am not talking about the philosophy held by many in holistic medicine. I am...reactions3comments
We Got Married!It gives me the creeps! No, I am not talking about blood being drawn from my elbow. Nor am I talking about...reactions5comments
Life After My Lupus DiagnosisGetting diagnosed with lupus has changed my life forever. There is so much I wish I could do that I can't or...reactions9comments
