How I Changed my Schedule to Accommodate Lupus FatigueWith a lupus diagnosis comes life changes. Sometimes these changes come in the form of pills that we have to take for...reactions5comments
4 Creative Outlets for People Living With LupusAccording to Brene Brown (author, social scientist, and researcher), "Unused creativity is not benign. It metastasizes. It turns into grief, rage, judgment...reactions2comments
3 Things I've Cut Out of My Life Because of LupusWhen I first became sick with lupus, I had no idea how much my life was about to change. I had to...reactions10comments
3 Strategies to Get a Good Night's SleepLupus patients are often fatigued and need more rest than the general population – which is why it’s so frustrating that many...reactions5comments
Write a Personalized Letter to CongressFor our community members in the United States, one meaningful way to start the conversation surrounding lupus awareness is to write a...reactionscomments
A Day in the Life With LupusLupus can leave you feeling drained, physically and emotionally. People who do not live with lupus do not always see the complications...reactions9comments
About 6 in 10 Lupus Patients Constantly Have to Explain the ConditionIt can be frustrating to explain lupus over and over again to people who simply do not understand. This can lead to...reactionscomments
Asthma & COPD with Lupus: Understanding the Link and RisksRecent research has shown that asthma and COPD are more common in people with lupus. In a new study, researchers looked at...reactions2comments
When Is It Time To Change Rheumatologists?At the end of 2017, I realized that I needed to change my rheumatologist. The time leading up to that decision leave...reactionscomments
Community Views: Tips for Better SleepLiving with lupus can bring many challenges, and one of the most common and exhausting is the struggle for restful sleep. This...reactions1comment
Why Is the Doctor-Patient Relationship Important?For those of you who were born before the millennium, medical treatment, living with a chronic illness, and navigating medical insurance was...reactions3comments
Building a Good Healthcare Team With LupusKnow thyself. In 2004, I secured a law clerk position with a judge in Fulton County, Georgia. I certainly felt blessed because...reactionscomments
What Are Tips For Building a Good Lupus Doctor Relationship?A good doctor treats the whole patient. I am not talking about the philosophy held by many in holistic medicine. I am...reactions3comments
We Got Married!It gives me the creeps! No, I am not talking about blood being drawn from my elbow. Nor am I talking about...reactions5comments
Life After My Lupus DiagnosisGetting diagnosed with lupus has changed my life forever. There is so much I wish I could do that I can't or...reactions9comments
My Lupus Advocacy JourneyI thought when I got diagnosed with lupus I would receive a "welcome packet" at the doctor's office, like you do when...reactions5comments
Living With Lupus and Other DiagnosesGetting a lupus diagnosis was hard enough at the age of 27, and looking back my doctors never prepared me if other...reactions7comments
Give Yourself Permission for Self-CompassionOn my lupus journey, I feel like I am the hardest on myself. Do you ever feel like you have to be...reactions11comments
Tips For Hospital Stays Because of LupusUnfortunately, hospital stays can be a normal part of living with lupus. Random pains and issues have to be taken seriously and...reactions4comments
Let’s Talk About Perfect Patient BurnoutI can’t recall what year in my lupus diagnosis I began feeling this way. It seemed the pressure was mounting with each...reactions20comments
