Altered Senses From LupusLiving with lupus has been a journey filled with unexpected twists and turns. Beyond the physical toll it takes on my body, I've come to realize how deeply it can...Reactions0reactionsComments5 comments
Brittle BonesBrittle bones is what they call me sometimes. Weather changes have us all in bed and feeling a little brittle. I have been going through it lately. We feel weather...Reactions0reactionsComments0 comments
Stress and High Blood Pressure with LupusIn this modern world in which we live and have the constant daily pressures of life, it isn’t easy to avoid stress. Especially when you throw in the added struggles...Reactions0reactionsComments0 comments
Who's On My Care Team As A Lupus Patient?Dealing with lupus and other chronic illnesses, I have a huge care team. It’s definitely not something to brag about but it is just the reality of dealing with so...Reactions0reactionsComments11 comments
3 Things I've Cut Out of My Life Because of LupusWhen I first became sick with lupus, I had no idea how much my life was about to change. I had to learn to carefully manage my energy, juggle doctors’...Reactions0reactionsComments2 comments
The Dating Pool With LupusLet's get into the dating pool with lupus. My friends and family have a whirlwind in the pool of men to choose from. In my experience, some aren’t ready or...Reactions0reactionsComments0 comments
The Wolf in Sheep's ClothingAs I wander through the woods of life, I find myself haunted by a cunning and deceptive creature, lupus. To me, it is a wolf in sheep's clothing, a master...Reactions0reactionsComments10 comments
My Journey with My Weight and Weight LossHow many times have you heard these words? “If you would just lose some weight?” If I had saved even a nickel from the times I heard this in my...Reactions0reactionsComments0 comments
7 Self-Love Principles Every Lupus Warrior Must PracticeNavigating life with lupus is like hiking without a guide – you could be experiencing a smooth road physically, but a few steps away are steep hills of mental, social...Reactions0reactionsComments4 comments
Understanding Your Lupus Lab WorkLupus causes the immune system to attack normal cells throughout your body. It is often difficult to diagnose. For example, there is no single blood test to determine if you...Reactions0reactionsComments0 comments
Acceptance Isn't EasyI have been going through a phase in my life lately where I’ve been reflecting back, and it really hit me just how much I’ve had to accept everything that...Reactions0reactionsComments2 comments
FatigueSince being diagnosed with fatigue, I've felt it the most lately. It feels like someone is bending my bones. The body aches that last at least 30 minutes to an...Reactions0reactionsComments0 comments
How Momentum Helps Me Fight Lupus Fatigue"I'm tired" is a phrase my husband and kids hear from me almost daily. I'm saddened that my illnesses have caused my family to expect my tiredness more often than...Reactions0reactionsComments5 comments
The Connection Between Lupus and Non-Hodgkins LymphomaWhen I got my lupus diagnosis, I never imagined that I would also get diagnosed with cancer. Especially at the young age of 33. Most of my virtual lupus friends...Reactions0reactionsComments0 comments
Juggling Different Health Challenges in this Lupus CircusAs I stand in a lupus whirlwind of healthcare appointments, medication schedules, and symptom management strategies, I have become fully aware of the delicate balancing act that has become my...Reactions0reactionsComments0 comments
Not Sorry To See You Go 2023I feel like I am not alone happily saying ADIOS 2023. If last year was a person, I feel quite confident that I would be throwing them and their belongings...Reactions0reactionsComments0 comments
Should You Hide Your Disease at Work?During my first five years living with lupus, I used to wake up an hour early before work. Even though my fatigue was at its most severe in the mornings...Reactions0reactionsComments9 comments
Juggling New Symptoms and A New JobWhen being a mother with systemic lupus erythematosus (SLE), discoid lupus and a new job, it can be overwhelming. I am currently in a flare up that I have been...Reactions0reactionsComments1 comments
Things You Shouldn’t Say To Someone With Chronic IllnessI’ve been thinking about some things that I’d love to get off my chest. I know you’ve heard these, probably just as many times as I have, living with lupus and...Reactions0reactionsComments2 comments
Mouth and Dental Issues with LupusI’ve always looked after my oral hygiene by brushing my teeth twice a day and practicing regular flossing. Up until recently, I’ve never had many issues - apart from a...Reactions0reactionsComments11 comments